General / Mental Health Support Thread

mackenzie said:
Have you tried acupuncture?
I believe it doesn't work for everyone but I think I remember a poster saying they had tried all sorts for a pain problem but nothing helped. They then had acupuncture and it was really effective.
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Tried it many years ago but not recently , not a bad idea to give it another go
 
kaz7 said:
Tried it many years ago but not recently , not a bad idea to give it another go
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Yeah, you never know. If the other idea you had doesnt come off, it might be worth trying.
Don't like to think of people in pain all the time, wish you well.
 
kaz7 said:
I have just had four sessions with the pain clinic and followed their instructions and physio to the letter but have got even worse , the fibro has extended and i am resigned to this being the new even worse normal. Been 8/9 months now . Mri of hip and xray was normal and msk agree it is the fibro getting worse . I cant walk so i am getting really down .I am on a ton of painkillers but feel i need to go up a level again . The dr might not agree of course
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It's one of those illnesses that people can't see, but you can feel! That's sometimes that worst part...apart from the physical pain. I hope you can find a way that helps.
 
Marklr said:
I wanted to get healthy just so I could enjoy fucking myself up again!
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I know I won’t! I’m mildly ashamed it was diet based and now I’ve become a committed vegetarian who never eats takeaways.

Healthy Body Healthy Mind, IMO.
 
MCFC Wirral said:
I know I won’t! I’m mildly ashamed it was diet based and now I’ve become a committed vegetarian who never eats takeaways.

Healthy Body Healthy Mind, IMO.
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I'm too old for it all now. Yeah...we enjoy getting unhealthy when we're young, but then we face the consequences later in life . Doh! All the best in your recovery, mate.
I bet when you were lying there in the hospital bed, totally bored and pissed off, you were day dreaming about going travelling and camping and so on..
 
kaz7 said:
How are you doing ?
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I'm ok, thanks. I'm going through an OK phase. Which is still quite bad. My muscles have shrunken and easily strained now. I'm ok mentally though.
When i have these phases, I can't stop doing things. Anything. I've just caulked the bathroom. I need to chill now ;)
 
Marklr said:
I'm too old for it all now. Yeah...we enjoy getting unhealthy when we're young, but then we face the consequences later in life . Doh! All the best in your recovery, mate.
I bet when you were lying there in the hospital bed, totally bored and pissed off, you were day dreaming about going travelling and camping and so on..
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IMG_2656.jpeg

I love being a veggie. I feel so much cleaner inside. Dad and Grandad were claimed by bowel cancer and then the **** came after me.
 
Saddleworth2 said:
Long Covid says hi.
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To be fair, even though I know a few that have long covid, and it is an immense struggle for them, I would still rather have it—or my condition—now than pretty much any other time in human history.
 
SebastianBlue said:
To be fair, even though I know a few that have long covid, and it is an immense struggle for them, I would still rather have it—or my condition—now than pretty much any other time in human history.
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I have two kids decimated by it and although you are probably right, it doesn’t feel like it given the amount of money and research currently pointed at getting some type of treatment.
 
Saddleworth2 said:
I have two kids decimated by it and although you are probably right, it doesn’t feel like it given the amount of money and research currently pointed at getting some type of treatment.
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Yeah, although I don’t have PASC, I can say with my MSA journey—which included confusion, fear, endless tests, false dawns, unnecessary treatment regimes from incorrect diagnoses, and the existential dread inducing uncertainty of it all until I got the correct diagnosis—it can obliterate your will to go on.

I am actually volunteering (in the way I can) for an organisation here in the US that works to help people avoid that experience, provides resources to ensure faster and more accurate paths to accurate diagnosis, and works to educate medical professionals on the disease, how to recognise the warnings signs early for assessment, and support patients through prognosis and treatment.

From what I understand similar organisations are popping up gor PASC and related conditions like ME/CFS.

All of it can be dehumanising and soul crushing but, if you think back to pretty much any other time in our collective history, our experience will have been worse.

Go back just 30 years for me and I am probably already dead.
 
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