I've had IBS for 10 years now, haven't had a bad flare up for a few years now but still get uncomfortable moments and uncomfortable goings tot he toilet every now and then. Thankfully I know which foods trigger it now.
OP given your situation is worse, I wouldn't just grin and bear it. Make sure somebody is trying to do something about it for you.
They are mate. Unfortunately I have had a couple of nasty flare ups over a short period of time. I was popping steroids like smarties at one point, plus on I/V steroids. You can't keep having them as they mess you up. They done my bloods a few weeks ago and the inflammation marker did not justify putting me back on steroids, it is definitely a last resort. So at the minute I do have to grin and bare it. Its not nice, but if I am going to be ill, now is the time to be ill.