journolud
Well-Known Member
I’m also pretty sure that changing to an automatic car means I am much less likely to get symptoms after a day of driving where I could have been otherwise constantly on and off the clutch pedal
Could be but I find it's worse when I'm idle, moving seems to help, horses for courses I suppose, either way it's a shitty disease.I’m also pretty sure that changing to an automatic car means I am much less likely to get symptoms after a day of driving where I could have been otherwise constantly on and off the clutch pedal
Hate ropinirole! No way did they tell me they were that bad when they prescribed it to me. I've reduced them to 1mg at night now, though....as I build up the dose of Gabapentin. So I'm kind of in-between and the last week has been hell. Apparently, withdrawal from Ropinirole is the same as cocaine withdrawal, as they're both dopamine agonists.It’s shit, sympathies OP. I was on Ropinirole for a good few years but eventually came off it as I got tired of the side effects, worried about the long term effects and also had rebound symptoms.
Nowadys I think I’ve got better at managing it by being mindful of my diet. No caffeine after lunchtime, reduced alcohol or basically be prepared to suffer if I do want a drink, not too much sugary food before bedtime. Also baths with Epsom salts and I believe that foods containing tryptophan before bedtime can help.
I have an apparent ability to store iron so take a supplement as well as magnesium. It’s under control but I struggle with it after a night shift, probably due to the amount of caffeine and sugary food I consume to keep me going.
This is the sort of stuff I read when I was prescribed it, was enough to put me off taking it after about 10 days, could feel the changes occurring even at that early stage. I also read quite a bit more and there were tales of people gambling away life savings, that's what frightened me most I think, I'm weak willed enough under normal circumstances without having a drug to encourage me.Hate ropinirole! No way did they tell me they were that bad when they prescribed it to me. I've reduced them to 1mg at night now, though....as I build up the dose of Gabapentin. So I'm kind of in-between and the last week has been hell. Apparently, withdrawal from Ropinirole is the same as cocaine withdrawal, as they're both dopamine agonists.
"Dopamine agonist withdrawal syndrome (DAWS)
DAWS has been reported with dopamine agonists, including ropinirole (see section 4.8). To discontinue treatment in patients, ropinirole should be tapered off (see section 4.2). Limited data suggests that patients with impulse control disorders and those receiving high daily dose and/or high cumulative doses of dopamine agonists may be at higher risk for developing DAWS. Withdrawal symptoms may include apathy, anxiety, depression, fatigue, sweating and pain and do not respond to levodopa. Prior to tapering off and discontinuing ropinirole, patients should be informed about potential withdrawal symptoms. Patients should be closely monitored during tapering and discontinuation. In case of severe and/or persistent withdrawal symptoms, temporary re-administration of ropinirole at the lowest effective dose may be considered."
I never got told about any of that.
Drives my wife mad when I get it. Start banging my calves on the bed and stretching to get rid of it.Had it for years and it's horrible. My Mum and sister both have it as well.
The wife says it's like sleeping with a windmill.
Stretching out the calves and hamstrings before going to bed seems to help.
My Mum and sister both take medication for it but I don't mind kicking the wife and getting away with it.
Not me but I did have a sub-arachnoid haemorrhage in 2010, the connection being that it occurred in the Circle of Willis, so named due to the research done by Sir Thomas Willis in the 17th century. RLS is otherwise known as Willis Ekbom disease, Thomas Willis was also the first to describe RLS in people, here is the translation of what he wrote in Latin in 1672,Had it for years.
It’s like insects moving around inside my calves.
Sometimes it’s ok sometimes it’s unbearable.
I take magnesium supplements and eat bananas for potassium.
I sit with my feet on a footstool and continually stretch my calves. Every night I do a set of calf and thigh stretching exercises.
When it’s really bad I wear surgical socks. I find the pressure on my calves gets rid of it, but I am told it’s dangerous to sleep with them on.
These strategies allow me to sleep 90% of the time.
Those reporting suffering from it , have you ever had lower back trauma of any sort?