Revol
Well-Known Member
My brother has it. He comes off as a bit "weird" and says some things that are awkward, but he has a great social life.
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'Asperger's' Syndrome
- Thread starter Pigeonho
- Start date
IFeedGoats said:
Cheers mate<br /><br />-- Tue Mar 09, 2010 5:34 pm --<br /><br />
fbloke said:As has already bee pointed out I am pretty deep into ASD/ASC and have been for a few years now.
My own 10 year is 'on the spectrum' so i like to feel that as I live with autism as well as work within it I have a better feel for the problems families like ours face.
I know of a number of people on here who also live with as ASD and it is more common than many know.
It is estimated that about 1.5% of the population is/should have a diagnosis.
I would also point people with kids who are struggling in school to the really important legislation that this government has enacted, namely Every Child Matters which allows all parent s and carers to make a case for help in all manner of ways.
When it comes to a mainstream school not supporting a kid with ANY disability never accept anything other than the very best. The system is geared to put barriers in the way but you have to stay strong and fight the bastards who dont necessarily know your kid and certainly dont care as much as you.
If there is anything anyone would like to know in general or has specific question I will do all I can to help.
You're not kidding, just getting a statement done is bloody hard work.
I have just done an afternoon in Thornhill Park School, Sunderland with a group of 6 kids on the spectrum.
It is always fun with them even though some of their behaviour can get 'lively' certainly when they feel stressed or have to deal with change.
The fact is ASD is the Autistic Spectrum Disorder (and the new descriptor would be ASC with disorder being replaced by condition) and is exactly that, a wide spectrum of challenges and behaviours that a person lives with all of their lives.
I am always in danger of sounding arrogant or angry when it comes to talking and reacting to talk about ASD/C as I feel I have to ask everyone to rethink their own reaction to a persons autism or aspergers.
There are a number of things I work on within groups in order to re-position thoughts and mindsets which can, within minutes have those living with a person on the spectrum saying thimngs like "ooohhh I see" "You know I never realised" "wow, if only I had known that x years ago it could have been so different"
If anyone is open to it I would happily do a session for anyone interested?
Perhaps the club could provide us with a room?
Just a thought.
If anyone wants more info feel free to PM.
It is always fun with them even though some of their behaviour can get 'lively' certainly when they feel stressed or have to deal with change.
The fact is ASD is the Autistic Spectrum Disorder (and the new descriptor would be ASC with disorder being replaced by condition) and is exactly that, a wide spectrum of challenges and behaviours that a person lives with all of their lives.
I am always in danger of sounding arrogant or angry when it comes to talking and reacting to talk about ASD/C as I feel I have to ask everyone to rethink their own reaction to a persons autism or aspergers.
There are a number of things I work on within groups in order to re-position thoughts and mindsets which can, within minutes have those living with a person on the spectrum saying thimngs like "ooohhh I see" "You know I never realised" "wow, if only I had known that x years ago it could have been so different"
If anyone is open to it I would happily do a session for anyone interested?
Perhaps the club could provide us with a room?
Just a thought.
If anyone wants more info feel free to PM.
blue_bird
Well-Known Member
Pigeonho said:Will be open from the off. My 11 year old lad is on the Autistic Spectrum with a form if Autism called Asperger's Syndrome. To talk too and look at you would not think anything was 'wrong' with him. The syndrome basically makes certain social skills more difficult, but not impossible as with a severe case of Autism. Having had the diagnosis 3 years ago, me and his mum have read extensively into it and it is alot more common than we thought. Robin Williams has it, Bill Murray and a few other well-known faces too. Does anyone on here know of anyone with this condition? PM me if you don't want to go public on it. The main reason I am asking is because my lad is due to start Senior School in September, and one of the main aspects of the condition is a tendency to worry, and I can tell just by looking at him, and by his behaviour, that he has the weight of the world on his shoulders at present, and we are after any advice or help anyone knows of. He is registered with various bodies who help to an extent, but its almost as if certain authorities like to lessen the severity of it and concentrate more on cases of actual autism, rather than just this condition which barely touches the spectrum.
I am in exactly the same boat. My little man also has Aspergers and is starting high school in Sept. It is a very worrying time for me so I appreciate what you're going through.
PM coming your way.
My Husband has mild aspergers. He can be really tactless and is usually worse when he's meeting somebody for the first time. Other than that he's great! He's got a degree and we run our own business so it hasn't been a real problem to him. He can just appear a bit "off" when people don't know him.
urmston
Well-Known Member
Most of what I've read here I agree with but the 'spectrum' is wide and encompasses many types of behaviour.
School can be difficult but mainstream is where most children on the spectrum are educated. Things can get difficult if your child is unsuitable for mainstream school to the extent that mainstream schools don't want him but on the other hand the council doesn't want to pay for him to go to a special school for financial reasons. In these cases the child and its parents get stuck between the council and the school, both of which don't really want to give way and things get very political, personal and unpleasant.
Another thing I've noticed is that one to one help for Aspergers children can be poor. Many helpers employed by schools prefer to look after less difficult children and Aspergers childeren can have a succession of short term one to one helpers, each leaving when an easier task crops up.
Hopefully these situations won't arise with your child but you should know about them just in case.
School can be difficult but mainstream is where most children on the spectrum are educated. Things can get difficult if your child is unsuitable for mainstream school to the extent that mainstream schools don't want him but on the other hand the council doesn't want to pay for him to go to a special school for financial reasons. In these cases the child and its parents get stuck between the council and the school, both of which don't really want to give way and things get very political, personal and unpleasant.
Another thing I've noticed is that one to one help for Aspergers children can be poor. Many helpers employed by schools prefer to look after less difficult children and Aspergers childeren can have a succession of short term one to one helpers, each leaving when an easier task crops up.
Hopefully these situations won't arise with your child but you should know about them just in case.
bolloxinabag
New Member
- Joined
- 29 Jan 2010
- Messages
- 4
Got Two nephews and a niece with varying degrees of Asbergers. theyre all at or been to secondary school.Our lass works at a school with kids who havs differing conditions.
She reckons,as long as you inform the school,everything will be fine.as you already know,kids with Asbergers can get stressed and blow.The school will recognise this and be able to handle it properly.
Shouldnt worry too much (easily said),cos kids are resilient little bleeders.
She reckons,as long as you inform the school,everything will be fine.as you already know,kids with Asbergers can get stressed and blow.The school will recognise this and be able to handle it properly.
Shouldnt worry too much (easily said),cos kids are resilient little bleeders.
eggchasingblue
Member
- Joined
- 9 Mar 2010
- Messages
- 19
Hi, I'm Buzzer 1's sister and as he said I work in a primary school and have worked with a child with Aspergers for 4 years. He went up to senior school last September and is doing fine. I'm not sure if the school have assigned a specific person for your son to talk to when things get tough but that certainly helped the boy I worked with as of things got on top of him, he could have a time out and a chat with myself. Also are the school completing the transition booklet with your son as this covers everything to do with moving up (which is what the booklets called) including the school day (covering different times for lunch etc, the different lessons he will have, and also the fact that he will have different teachers for different things). Aspergers does create issues socially but If you haven't already, ask the school to involve him in a Social group which covers everything from low self esteem, to interacting with his peer group. I will say when the boy I worked with left school my abiding memory was of him performing in the leaving play full of confidence and smiling. With the right kind of input from the school then you should have some of your worries eased. Also ask the school which he is going to what kind of help there is available for him. I wish you lots of luck.
hello. i am racingeye's partner.
he saw this post and asked me if there was any info i may be able to pass on to you. I am a carer and work with adults, some of these have aspergers syndrome and some with other learning difficulties.
It is great to see all the support you have been offered on this thread already, my information may not far differ from everyone else's but I will let you know what i experience everyday with aspergers.
anxiety is very common with aspergers from a young age so i appreciate this may be alot of pressure for you, your family and of course your son, but with the right support network this should not become an unmanageable situation.
routine seems very important to them too, for example a change in my "clients" routine is enough to make them physically sick through anxiety. If you know there will be a change in routine you need to outline all areas of this with your son. with aspergers there tends to be no grey areas, everything is in black and white so you need to be clear that the teachers appreciate about aspergers and they need to be clear in the way they word things as if it is not clear to them it is possible to send them into a panic which can then also lead into further anxiety. For example i once said to my client "put yourself in my shoes" this threw my client as he thought i meant it seriously and his reply was, " i cant there too small" this may seem a funny mistake to us but sent my client into utter confusion.
We have also found with our clients of aspergers that you are better to not give them a list of tasks/orders as they cant digest too much information at one given time? this may not be the case with your son but i am trying to outline some of the issues we cross as these may also help you later on in life as these examples are based on adults, not children. We have found that if we give our client say 5 things to do he will remember the 1st and the last but none in between, you can try and work on this by perhaps giving them a list of the requests so they dont have to memorise. I am sorry if you feel i have blabbed on :(
Please find comfort in knowing that aspergers will not hold your son back as they are very intelligent they just need to be understood with the right support in place.
Im pressuming your son is under psychology? they can also recommend tips for seeing him through mainstream school, but i highly recommend you look into what the school know about aspergers and I would also recommend you get some sort of action plan put in place so you and school will both be happy with the support your son should recieve. from the knowledge i have some schools will say they have everything in place to deal with aspergers but i would still recommend that you look into this as sometimes they will just label children with such disabiliy as "naughty children" and this is just wrong....
ok so i did go off in a bit of a rant there and im sorry but this is a matter close to my heart..
i hope you find assurance in all the help you have recieved and i wish you, your family and your son all the best for the future. should you want to speak further? please dont hesitate in contacting me :) or actually racingeye and he will pass the message on.
he saw this post and asked me if there was any info i may be able to pass on to you. I am a carer and work with adults, some of these have aspergers syndrome and some with other learning difficulties.
It is great to see all the support you have been offered on this thread already, my information may not far differ from everyone else's but I will let you know what i experience everyday with aspergers.
anxiety is very common with aspergers from a young age so i appreciate this may be alot of pressure for you, your family and of course your son, but with the right support network this should not become an unmanageable situation.
routine seems very important to them too, for example a change in my "clients" routine is enough to make them physically sick through anxiety. If you know there will be a change in routine you need to outline all areas of this with your son. with aspergers there tends to be no grey areas, everything is in black and white so you need to be clear that the teachers appreciate about aspergers and they need to be clear in the way they word things as if it is not clear to them it is possible to send them into a panic which can then also lead into further anxiety. For example i once said to my client "put yourself in my shoes" this threw my client as he thought i meant it seriously and his reply was, " i cant there too small" this may seem a funny mistake to us but sent my client into utter confusion.
We have also found with our clients of aspergers that you are better to not give them a list of tasks/orders as they cant digest too much information at one given time? this may not be the case with your son but i am trying to outline some of the issues we cross as these may also help you later on in life as these examples are based on adults, not children. We have found that if we give our client say 5 things to do he will remember the 1st and the last but none in between, you can try and work on this by perhaps giving them a list of the requests so they dont have to memorise. I am sorry if you feel i have blabbed on :(
Please find comfort in knowing that aspergers will not hold your son back as they are very intelligent they just need to be understood with the right support in place.
Im pressuming your son is under psychology? they can also recommend tips for seeing him through mainstream school, but i highly recommend you look into what the school know about aspergers and I would also recommend you get some sort of action plan put in place so you and school will both be happy with the support your son should recieve. from the knowledge i have some schools will say they have everything in place to deal with aspergers but i would still recommend that you look into this as sometimes they will just label children with such disabiliy as "naughty children" and this is just wrong....
ok so i did go off in a bit of a rant there and im sorry but this is a matter close to my heart..
i hope you find assurance in all the help you have recieved and i wish you, your family and your son all the best for the future. should you want to speak further? please dont hesitate in contacting me :) or actually racingeye and he will pass the message on.
maineman
Well-Known Member
according to a certain poster on here this syndrome does not excist