Rascal
El Presidente
Alright mate. I did Imraldi when it first came out. It is off patent now as it was originally called Adilimubab. It worked fine for me for a couple of years. The problems with these biologic drugs is that your own body fights them and creates resistance to them so over time they will lose their efficacy.Hi All
Ive suffered with this condition for nearly 30 years now, took the docs an age to diagnose it, which made things worse.. I was eventually put on a drug called Imfliximab which I was given at the hospital every 12 weeks by IV infusion. After a chat with my consultant, he put me on a drug called Imraldi which is self delivered using an epipen injection in my leg. This is so far doing a great job and means i dont have to lie at work and sneak off to the hospital every 12 weeks, also with the covid thing, I am not sure how I would have coped if i could not go to the hospital to get the stuff..
Is anyone else on Imraldi? if not, I think its worth a go if your consultant agrees, its fairly painless and takes 5 seconds rather than half a day.. I get flare ups every now and then when i think the medication isnt working but they seem to calm down after a few weeks and I only get them every now and then..
The weird thing is, I only ever had one lesion on my leg which disappeared years ago, i am very lucky in that respect for sure..
Good luck to you all with your treatments
I was one of the very first in the NW to try Infliximab, which was a pain in the arse going for the infusion and I had an anaphylactic reaction to it and I am no longer allowed it or drugs that are similar, I believe Inflixi is now used to treat IBS as well.
It really is dreadful that you had to lie to work just so you could medical treatment, they must be cunts.
As for COVID, Prof Griffthis from SRFT has done a video about biologics and Covid which you can see through the Psoriasis Association website. Which may help anyone with any fears they may have.
To actually get the biologics you have to follow certain treatment pathways mainly due to expense. Biologics are expensive and when they were first introduced they could cost over £1k per treatment, the cost now is much lower due to them coming off patent which means they are more widely available and anyone suffering from this condition has to ask their Health Professionals about them. They make such a difference it is incredible.
You pal I can quite understand why you were difficult to diagnose, having only 1 lesion could lead it to be dismissed and with PsA being a rarer type of arthritic issue it can be easily misdiagnosed. There are certain factors that do indicate PsA though such as pitting in finger and toe nails and sore heels, you can also get associated problems such as anklonsyning Spondilities and Bursitis as well, plus a myriad of other weird and wacky issues. There is even ongoing studies into its effect on the heart, vision, and people do report issues with teeth and Gums, anyone who knows me will notice that, I am a right gummy fucker.
I am well pleased though pal its working for you and keep your chin up because the next generation of biologics will be even better according to my Prof and the work that is being done by an organisation called BADBIR is providing amazing data on all the biologics. Plus there is a new inititive called the Global Psoriasis Atlas which is being run out of Manchester Uni which is mapping the prevalence of the condition worldwide in order to see what genes have an affect. The project manager has promised me an update on its work when the covid stuff is over as long as I buy her some glasses of wine :))