Skin conditions

[Bill]

bump.

 

[denislawsbackheel]

P

Go in the sun as often as you can, do not put sun screen on your effected parts it helps dry the condition out
Rich people with your condition spend months on end around the Dead Sea area as the sunlight is supposed to be the purest light on Earth, your back garden will do though:)

Pure light.

What's that then?

 

[Rascal]

Gonna just leave this here.

Thanks for putting that up mate.

I am an Ambassador for the Psoriasis Shout Out campaign, i have been involved in research and worked alongside my Prof and his team on some preceptorship's involving Pharma companies. I also give talks to Derm nurses and represented Prof as a patient advocate at a Psort meeting and am invovled with IMPACTpsorasis who are a research based unit at Manchester University. I have also advised NICE on guidelines surrounding new pharma products. Also later this year i will be having an article published in the Derm monthly in-house magazine. I am working with Lilly Pharma at the moment on a poetry handbook that will hopefully be distributed alongside Lilly Pharma products.

I have had Psoriasis and Psoriatic arthritis for over 30 years and i am well versed in pretty much every treatment available. I have no medical qualifications, but do have training into how to advise people with the conditions.

I came across this thread by accident, i have not been around this forum for a long time but if need be i can advise and hopefully help and answer any questions people may have.

Treatment wise over the years i have had the following
Tar, up to 100%
Eoisin
The full range of available steroid creams
Puva
UVB
Various moisturisers
Fumaderm
Acetretin
Cyclosporin
Methotrexate
Sulphalsalisine
Infliximab
Eternacept
Humira
Ustekinamab
Certolozimabab

There are many myths that surround Psoriasis, some of which i have read on this thread. Over the years i have encountered the occasional disturbing misconception and faced some pretty overt ignorance towards my condition. Psoriasis is much more than a skin condition and can cause severe pscyohological effects alongside severe medical effects. It is a chronic long term amti-immuno condition with debilitating effects. No cure is available as of yet although my Prof reckons we might see one in my lifetime.Research into the condition is extensive but because the powers that be see Psoriasis as only a "skin problem" funding is difficult to acquire.

Your GP will maybe only one days tuition on the whole of Dermatology during there 7 years training and is therefore likely to either misdiagnose you or give you innappropriate treatment. Psort is an initiative led by my Prof that is working towards a concept called stratified medicine, in which a simple blood test will allow your doctor to indentify the correct treatment for you as an individual. Eventually it is hoped this will branch out into other fields of medicine too.

If anyone needs advice please get in touch on this thread or by PM if need be and hopefully i can advise or point you in the right direction to get proper help.


This link may help too.

http://www.psoriasisshoutout.co.uk/

 

[Juan King]

The Mrs went all healthy and as a result she cut out milk and lessened dairy in general. Switched to a plant based diet so no meat at all and as a result my psoriasis reduced to a small patch on my right knee only. For that I make some homemade coconut oil and weed cream to apply, works a treat.

This worked for me too. I had seen many specialist over the years who only prescribed things or put me forward for light treatment, which worked at the time but it would then flare up again. I had asked specialists before if it could be diet related and they all played it down, saying diet wasn't significant. I cut out dairy and after that my skin cleared up completely.

 

[Southern]

Go in the sun as often as you can, do not put sun screen on your effected parts it helps dry the condition out
Rich people with your condition spend months on end around the Dead Sea area as the sunlight is supposed to be the purest light on Earth, your back garden will do though:)

You saying he ain't rich?

 

[Fat Chance]

had it when i was 14 all over me torso, me mother suffered with it and was adamandtheants it was uncurable. I washed it away over a two-week period (family holiday) with seaweed, sunshine on family holidays helped previously but the sun and the sea salt combined with the seaweed (flannel) nailed it. just got a few spots started on the back of me knees this year....40yrs later. Might have to google where kelp central is nowadays.

 

[I'm Blue]

As a psoriasis sufferer myself.
I found one of the biggest triggers for me was tomatoes, I read online about tomatoes and psoriasis then soon noticed that if I'd ate tomatoes the day after my skin would be much worse, itchy, burning etc..
It seems to be foods with high amounts of tomatoes in it, curry, spaghetti bolognese, chilli and pizza were all bad for me, so I no longer have these.
I do make my own pizza now without tomato, I buy a cheesy garlic pizza and add some toppings of my own, garlic being anti inflammatory so also good for psoriasis.
Again with anti inflammatory, I now eat more pineapple and blueberries.
I've also cut down on my red meat intake, I read red meat is not good for psoriasis and red meat was all I used to eat, now I eat more chicken and turkey.
The last change I did was the 5:2 diet, I read people were having some success with the 5:2 diet and psoriasis, I needed to lose some timber after giving up smoking so thought I'd give it ago.
I've been doing the 5:2 diet for about 6 months along with changes above and I've lost quite a lot of weight, not weighed myself in years but I've lost about 2-3 inches from around my waistline and my skin is so much better.
The two main places I suffer with psoriasis is the top of my head and my face, the top of my head isn't too bad, just a dry scalp, I shave my head so I just plaster this with coco butter and it keeps it under control, hardly noticeable just looks like abit of dandruff.
My face on the other hand was terrible, bright red dry patches about 6 inches across on either side of my face, got so bad that I didn't want to go out, I could see people starring at me and it got me down.
Since making the changes above my face has been clear for about 3 months.
There is obviously a medical condition that causes psoriasis (wish they'd hurry up and find it), but it is definitely affected by the food we eat.

 

[Rascal]

had it when i was 14 all over me torso, me mother suffered with it and was adamandtheants it was uncurable. I washed it away over a two-week period (family holiday) with seaweed, sunshine on family holidays helped previously but the sun and the sea salt combined with the seaweed (flannel) nailed it. just got a few spots started on the back of me knees this year....40yrs later. Might have to google where kelp central is nowadays.

14 is a common age for it to start. Flares every 7 years from that point are also common. It is also considered to be an heredity condition and research into genetics are being undertaken. Also it can skip generations, so a grandparent may have had it and your parent not. With the tendency of psoriasis sufferers to hide the condition many people are totally unaware that close family members may have it.

It is a common misconception that sun works for everyone. It is not the case, some psoriasis sufferers are sun averse. Kelp is known to help but herbalists are also known to take advantage and charge ludicrous amounts for items that have no clinical basis. Mild sufferers can attribute becoming clear to a myriad of reasons, whilst in reality many short term flares clear on there own. No herbalist or online dealer etc etc will tell you that because they want your money.

Psoriasis is a mirror condition. It is highly likely that if you get a flare on one knee you will get one on the other.

Hope it goes well for you and it soon clears.

 

[andyhinch]

14 is a common age for it to start. Flares every 7 years from that point are also common. It is also considered to be an heredity condition and research into genetics are being undertaken. Also it can skip generations, so a grandparent may have had it and your parent not. With the tendency of psoriasis sufferers to hide the condition many people are totally unaware that close family members may have it.

It is a common misconception that sun works for everyone. It is not the case, some psoriasis sufferers are sun averse. Kelp is known to help but herbalists are also known to take advantage and charge ludicrous amounts for items that have no clinical basis. Mild sufferers can attribute becoming clear to a myriad of reasons, whilst in reality many short term flares clear on there own. No herbalist or online dealer etc etc will tell you that because they want your money.

Psoriasis is a mirror condition. It is highly likely that if you get a flare on one knee you will get one on the other.

Hope it goes well for you and it soon clears.

Good to see you back mate, going on Monday?

 

[Rascal]

As a psoriasis sufferer myself.
I found one of the biggest triggers for me was tomatoes, I read online about tomatoes and psoriasis then soon noticed that if I'd ate tomatoes the day after my skin would be much worse, itchy, burning etc..
It seems to be foods with high amounts of tomatoes in it, curry, spaghetti bolognese, chilli and pizza were all bad for me, so I no longer have these.
I do make my own pizza now without tomato, I buy a cheesy garlic pizza and add some toppings of my own, garlic being anti inflammatory so also good for psoriasis.
Again with anti inflammatory, I now eat more pineapple and blueberries.
I've also cut down on my red meat intake, I read red meat is not good for psoriasis and red meat was all I used to eat, now I eat more chicken and turkey.
The last change I did was the 5:2 diet, I read people were having some success with the 5:2 diet and psoriasis, I needed to lose some timber after giving up smoking so thought I'd give it ago.
I've been doing the 5:2 diet for about 6 months along with changes above and I've lost quite a lot of weight, not weighed myself in years but I've lost about 2-3 inches from around my waistline and my skin is so much better.
The two main places I suffer with psoriasis is the top of my head and my face, the top of my head isn't too bad, just a dry scalp, I shave my head so I just plaster this with coco butter and it keeps it under control, hardly noticeable just looks like abit of dandruff.
My face on the other hand was terrible, bright red dry patches about 6 inches across on either side of my face, got so bad that I didn't want to go out, I could see people starring at me and it got me down.
Since making the changes above my face has been clear for about 3 months.
There is obviously a medical condition that causes psoriasis (wish they'd hurry up and find it), but it is definitely affected by the food we eat.

I have seen no research or heard of any reason why food affects Psoriasis. Have you been diagnosed with Psoraisis? I ask because other skin conditions can be affected by what we eat, drink etc. I dont know much about it but your face problems could well be Sebhorroic dermatitisis (sp) which can arise from allergies. It can be cleared with mild steroid creams.

Try washing whats left of your hair in T-Gel shampoo or ask your Doc for a tube of cocois.

The medical condition that mainly causes Psoraisis is a faulty immune system. It can be linked to Streptoccocal sore throats. Basically your immune system starts to fight the infection and when then infection is gone, the immune system does n close down. Anti immuno deficiency drugs such as Methotrexate and Ciclosporin are used to damp down your immune system.