it would be good if the club could do some kind of fundraising event for them. It is a **** of a disease with 50% of those diagnosed dead within 2 years and 95% dead after 5 years.
Steph will watch her husband decline from being a professional athlete to someone who cannot walk, bathe himself or even talk. eventually the person cannot swallow or breath. There is no cure, the only thing that is sure is that you will deteriorate. imagine having this or watching your other half with it. It may be the end of two careers rather than just one. I hope the club does something for them.
my heart goes out to them.