Any Long Covid sufferers on here?

Marklr said:
Yeah...I have Long COVID appointments every month now. They can help with loads (apart from an actual cure)..i got a free pass for the local gyms and swimming baths. I'll take up swimming next week...see if that kind of exercise helps. I doubt it, though...any exercise or slight bit of work wipes me right out. I feel worse since getting this over a year ago.
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That’s shit mate. So you are feeling worse now. Are the symptoms not improving at all?
 
Marklr said:
He'll have to check with his local health authority to see what they're doing about Long COVID. They SHOULD have some kind of help for him.
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He has been referred to a ME clinic 40 miles away and told that the waiting list is long. From what I understand some of the chronic fatigue symptoms are similar to ME. That’s it though. He also has pots symptoms which I believe is common with long Covid.
 
Saddleworth2 said:
He is 44 and was fit as a flee when he got a mild dose of Covid last August. Were you diagnosed methotrexate by your doctor? Has he/she been supporting you? My lad has basically been left to fend for himself.
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Same I was running events all the time, got a mild dose and now where I am. Slowly getting back to things but its taken over12 months of hell.

Yeah its from the NHS that they have got me on this drug, although its not yet kicked in (can take 3 months) so having short courses of a steroid.
 
Saddleworth2 said:
He is 44 and was fit as a flee when he got a mild dose of Covid last August. Were you diagnosed methotrexate by your doctor? Has he/she been supporting you? My lad has basically been left to fend for himself.
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I've had covid three times now and have a pretty good handle on my before/after fitness because I do (did) a lot of running and am geeky with heart rate date. Weirdly I've found in my case, the milder the illness the longer the recovery. Last covid was in September 22 and I'm still shattered all the time with resting heart rate alarmingly high.
I do worry that in some senses a 'long covid' diagnosis is essentially the medical profession shrugging it's shoulders and giving up - it's not like the Dr is going to give me a course of tablets that will sort it out. I am getting tested for other stuff now as well though.
 
Mazzarelli's Swiss Cheese said:
I've had covid three times now and have a pretty good handle on my before/after fitness because I do (did) a lot of running and am geeky with heart rate date. Weirdly I've found in my case, the milder the illness the longer the recovery. Last covid was in September 22 and I'm still shattered all the time with resting heart rate alarmingly high.
I do worry that in some senses a 'long covid' diagnosis is essentially the medical profession shrugging it's shoulders and giving up - it's not like the Dr is going to give me a course of tablets that will sort it out. I am getting tested for other stuff now as well though.
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That’s exactly right. My lads doctor has basically told him nothing I can do. That’s a dangerous message as new symptoms are emerging that he should have checked out and potentially treated for.
If the numbers suffering from Long Covid are even a half of what is being talked about we should be pouring research into potential treatments. I’m far from convinced that is happening.
 
Had a really rough past couple of weeks especially the Wednesday & Thursday before Easter.

Could hardly get out of bed I was so tired and ever since then I've been up and down. Some days I feel ok others I'm just completely shattered. It's really weird.

My long COVID referral has also been put back to may noe due to the doctor's strike.

My only advice from my GP is just to take it easy and not over do things.

Been like this for 6 months now. It's fucking horrible
 
Saddleworth2 said:
He has been referred to a ME clinic 40 miles away and told that the waiting list is long. From what I understand some of the chronic fatigue symptoms are similar to ME. That’s it though. He also has pots symptoms which I believe is common with long Covid.
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Long covid is essentially ME with some organ damage , having had, well still have ME for a long time now and then i had long covid lungs for over a year , now resolved

Google ME and that gives you a place to start in terms of recovery , rest and light activities , always stop when you feel good on a good day or you will pay dearly if you push it too hard . Diet is important too, keep it healthy
 
kaz7 said:
Long covid is essentially ME with some organ damage , having had, well still have ME for a long time now and then i had long covid lungs for over a year , now resolved

Google ME and that gives you a place to start in terms of recovery , rest and light activities , always stop when you feel good on a good day or you will pay dearly if you push it too hard . Diet is important too, keep it healthy
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Thanks Kaz. It’s for my lad rather than me. I recognise everything you have said though. It’s good that you have made a recovery from the Covid lungs. With him it’s chronic fatigue, muscle pain and pots. It’s really shit that there seems nothing to do other than put his life on hold, rest and eat very healthily. Hopefully he will get some practical health at the ME clinic.
 
Got covid for second time last June and in the next 7 months I have had 3 chest infections needing antibiotics. Before that I cant remember last infection if any. People dismiss covid so easily now but in some folk it does gave a lasting effect.
 
NI Blue said:
Got covid for second time last June and in the next 7 months I have had 3 chest infections needing antibiotics. Before that I cant remember last infection if any. People dismiss covid so easily now but in some folk it does gave a lasting effect.
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I’m similar, I’ve had two chest infections since November and both times they floored me. I originally had covid a year prior and for a few months afterwards would be breathing heavily just walking up the stairs. My resting heart rate has also gone from low 50s to low 60s.
 
Two weeks into whatever the fuck, this latest bout or probably boutS. Was - sneezing, headaches, coughing fits. With flashes of chest pains over night. Uhh.. Oh, and dire IBS. Fuck. Off.

Now I have a sore throat. PTSD style flashing images when I fall asleep. Tiredness getting much worse. Rashes on my chest? Can feel the excessive warmth in my back when I go out for a walk.

Have taken myself off the hook for righting the world's current wrongs tho, which is helping.
 
Saddleworth2 said:
Thanks Kaz. It’s for my lad rather than me. I recognise everything you have said though. It’s good that you have made a recovery from the Covid lungs. With him it’s chronic fatigue, muscle pain and pots. It’s really shit that there seems nothing to do other than put his life on hold, rest and eat very healthily. Hopefully he will get some practical health at the ME clinic.
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I have my fingers crossed for him and the others with long covid/ME/ fibro x
 
kaz7 said:
Long covid is essentially ME with some organ damage , having had, well still have ME for a long time now and then i had long covid lungs for over a year , now resolved

Google ME and that gives you a place to start in terms of recovery , rest and light activities , always stop when you feel good on a good day or you will pay dearly if you push it too hard . Diet is important too, keep it healthy
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I can only echo what @kaz7 says n her last two sentences, especially about not pushing too hard. My doctor told me that just pulls you back. He also said it could take up to 12 months and he was correct. It was 12 months on St Pat's day last year I went into hospital with Covid and then pneumonia and only now that I am beginning to *fingers crossed* feel like a human being again instead of an ancient, pain ridden, exhausted antique!! Not quite ready to get back to matches but will hopefully make the last home game of the season v Chelsea (if I remember correctly) which is the day after my birthday and I was thinking of treating myself to hospitality but then figured I'd miss my usual crew and away from row A I wouldn't be able to shout at whoever might be Chelsea's manager at the time to get back in his technical area. (although by then it might even be a woman as their manager the way they are going!!) :-)

Good luck everyone. Let's hope this flaming Long Covid is over for everyone soon and the ME sufferers get some relief as well.
 
Eccles Blue said:
I can only echo what @kaz7 says n her last two sentences, especially about not pushing too hard. My doctor told me that just pulls you back. He also said it could take up to 12 months and he was correct. It was 12 months on St Pat's day last year I went into hospital with Covid and then pneumonia and only now that I am beginning to *fingers crossed* feel like a human being again instead of an ancient, pain ridden, exhausted antique!! Not quite ready to get back to matches but will hopefully make the last home game of the season v Chelsea (if I remember correctly) which is the day after my birthday and I was thinking of treating myself to hospitality but then figured I'd miss my usual crew and away from row A I wouldn't be able to shout at whoever might be Chelsea's manager at the time to get back in his technical area. (although by then it might even be a woman as their manager the way they are going!!) :-)

Good luck everyone. Let's hope this flaming Long Covid is over for everyone soon and the ME sufferers get some relief as well.
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Glad to hear you are improving lovely , you will have saved up some shouting , you had better offer whoever you go with some earplugs ! X
 
Eccles Blue said:
I can only echo what @kaz7 says n her last two sentences, especially about not pushing too hard. My doctor told me that just pulls you back. He also said it could take up to 12 months and he was correct. It was 12 months on St Pat's day last year I went into hospital with Covid and then pneumonia and only now that I am beginning to *fingers crossed* feel like a human being again instead of an ancient, pain ridden, exhausted antique!! Not quite ready to get back to matches but will hopefully make the last home game of the season v Chelsea (if I remember correctly) which is the day after my birthday and I was thinking of treating myself to hospitality but then figured I'd miss my usual crew and away from row A I wouldn't be able to shout at whoever might be Chelsea's manager at the time to get back in his technical area. (although by then it might even be a woman as their manager the way they are going!!) :-)

Good luck everyone. Let's hope this flaming Long Covid is over for everyone soon and the ME sufferers get some relief as well.
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Glad you are feeling better. Can I ask, did you feel better gradually or is it only in the last couple of months? My lad is 8 months in and no sign of improvement at all. I suppose everyone is different. Anyway, great that you have almost recovered and glad that you will get to cheer on Johnboy live soon. I'm sure he will have missed you ;-)
 
Saddleworth2 said:
Glad you are feeling better. Can I ask, did you feel better gradually or is it only in the last couple of months? My lad is 8 months in and no sign of improvement at all. I suppose everyone is different. Anyway, great that you have almost recovered and glad that you will get to cheer on Johnboy live soon. I'm sure he will have missed you ;-)
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It was in the last month that I began to feel more like myself. I suddenly realised that instead of acute pain when I moved it was more a dull ache. For the past fortnight I have been on the minimum pain killer tablets. Plus staying awake for longer periods and tasting and smelling my food again.
For example today I did a click and collect order. Normally I have to have a rest in between carrying the groceries in to the house and unpacking but today I brought them in and unpacked and put them away before I sat down for my cuppa!

I’m a miser by the way. I do a delivery one week and C & C the next once a month (if that makes sense?) but I time it so that I get the delivery either free or 50p! And the C & C free.
Sorry that’s a long winded way of saying for 10 months I was in despair, trying to stay cheerful then the last few weeks beginning to feel more ‘normal’. I really feel for your son but tell him to keep in mind that ‘this also shall pass’.
I’m really sorry I can’t be any more help but everyone is different and I hope that youth will be on his side.
 
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