Assisted dying

Mr Kobayashi said:
Not as clear cut as that.

People with MND appear to fall into four groups: around 50% are unaffected by cognitive change. around 35% experience mild cognitive change, with specific deficits in executive functions, language and/or social cognition. up to 15% develop frontotemporal dementia (FTD), either at the same time or after diagnosis of MND.

Motor Neurone Disease (MND) | Fact Sheet | Health Information | Brain & Spine Foundation

Motor Neurone Disease (MND) | Fact Sheet - information, support and advice from the Brain & Spine Foundation.
www.brainandspine.org.uk www.brainandspine.org.uk
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Thanks for this mate. Might still be a good case study cohort for the 50%. Horrible illness.

Ideally we’d have a cure for all these things rather than discussing folk wanting to kill themselves. I appreciate that’s wishful thinking as new conditions will come up all the time. Some of these conditions are as a result of our own ways of life - breast cancer, for example, was fairly rare (certainly not the big killer it is today) until the 1950s then it really exploded in cases - that explosion is down to the contraceptive pill. Something to do with the hormones which is why it is more common post menopause hence why we scan over 50s routinely.
 
metalblue said:
You’re probably right, I’m only going off what Mrs MB tells me who has over 8 years experience as a specialist palliative care nurse (who advise doctors on pain management in EoL patients). Her colleagues I saw over weekend said same as this thread discussion came up. Interestingly they all said they would leave medicine if they were asked to even provide tablets to patients, which I was surprised at.

When my dad was at EoL he was on something like 120mg PRN and his doctor said to Mrs MB (who was their in her capacity as a relative not professionally) shall we put him on a syringe driver starting dose of 20mg? Mrs MB reminded the doctor that policy would suggest he be on 80mg start with view to add breakthrough dose if required and increase SD as necessary. This is an example of how it goes wrong, individual errors, not that the drugs aren’t available nor the expertise to ensure a good death.

Now there is a fine balancing act here as morphine reduces the respiratory system which will naturally lower someone’s stats, too much and you may hastens someone’s death (their roles is to neither hasten nor delay death) so they work on the principles of “you can always increase doses” however these specialist nurses can usually tell when someone is in the final hours so if they are not symptom controlled they will, time allowing, increase doses but that should be very rare that someone on their caseload gets to that stage still suffering from pain or terminal restlessness/agitation.

Anyway you saying it is complete bollocks, how so?
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Firstly, massive respect to your mrs MB for doing what must be an incredibly difficult job.

I'm looking at this with my mrs in mind. Diagnosed with MS 15 years ago she has had specialist 'care' ever since. This care, and the medication that goes, with it merely slows down the degeneration and attempts to relieve pain and other symptoms.
Nothing will 'cure' her disease. She is currently on experimental drug after all the others became less and less effective at slowing down her decline. There is (currently) no other drug to try after this one. She could have the best healthcare in the world and it won't make a blind bit of difference to the predicted and inevitable end.
The wife has been getting everything in order for when she's had enough of struggling through life going downhill rapidly. Right now she cannot face another winter and the future shows no sign of getting any better for her. In fact, it is guaranteed to get worse. Nothing will change for the better regardless of what the doctors try. They can merely delay the inevitable.
 
stonerblue said:
Firstly, massive respect to your mrs MB for doing what must be an incredibly difficult job.

I'm looking at this with my mrs in mind. Diagnosed with MS 15 years ago she has had specialist 'care' ever since. This care, and the medication that goes, with it merely slows down the degeneration and attempts to relieve pain and other symptoms.
Nothing will 'cure' her disease. She is currently on experimental drug after all the others became less and less effective at slowing down her decline. There is (currently) no other drug to try after this one. She could have the best healthcare in the world and it won't make a blind bit of difference to the predicted and inevitable end.
The wife has been getting everything in order for when she's had enough of struggling through life going downhill rapidly. Right now she cannot face another winter and the future shows no sign of getting any better for her. In fact, it is guaranteed to get worse. Nothing will change for the better regardless of what the doctors try. They can merely delay the inevitable.
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I’ve no words to make anything better for you but much love and respect to you both mate.

Not ashamed to say your words brought a tear to my eye, I know Mrs MB would look to focus on you both being able to do small things that bring happiness, and I truly hope you can both get enough out of life to make it feel worthwhile, nobody should be thinking how your wife is. Are you both getting psychological support? It can be an area overlooked particularly when having active treatment. If not do talk to your specialist about how you are both feeling mate.
 
metalblue said:
I’ve no words to make anything better for you but much love and respect to you both mate.

Not ashamed to say your words brought a tear to my eye, I know Mrs MB would look to focus on you both being able to do small things that bring happiness, and I truly hope you can both get enough out of life to make it feel worthwhile, nobody should be thinking how your wife is. Are you both getting psychological support? It can be an area overlooked particularly when having active treatment. If not do talk to your specialist about how you are both feeling mate.
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Thanks MB.
Didn't mean to lay it on so thick but our situation is the same for thousands of people.
Being in control of how and when it's time to call it a day would at least bring them some peace and relieve a lot of the depression that comes with facing a horrible end to life.
I don't think a frontline medical professional should be put in a position where they have to decide if a patient is given a pill/liquid/injection to end life painlessly and peacefully. Give those in that situation the means to end their life and let them decide when or if they use it.
 
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