Incurable Brain Tumours

[nijinsky's fetlocks]

Stay positive mate.
Very best wishes to you and your loved ones.

 

[billy_big_spuds]

Mate I don't physically know what your going through but my sister had a brain tumor about 6 years ago when she was 24, she was having trouble with her eyes and the doctors and optician put it down as poor eye sight till half a year later they noticed the tumor after she gave birth to my niece (her second child).

I'm not going to lie but it scared us all as it was potential life threatening I don't know what grade it was but it was pretty damn severe, she also went Hope Hospital but they could only remove part of the tumor leaving the root and a possibility of it regrowing again which it did a few months back but she was took into radiotherapy and all seems ok now with her, she seems healthy and enjoying her life at 30 years old with her 2 great kids. She will obviously have to keep visiting the hospital everytime it regrows to have more radiotherapy but obvioulsy thats nothing when you go through what your going through now...

Guess all I'm saying is just get through all this mate I can imagine its scary as hell for you and I hope and believe you'll get through it and when you do pal you'll be at home in no time with your step kids and hopefully you and your missus will be expecting a child soon....

Hang in there mate.

i'm glad you wrote this mate, really glad. 6 years and counting gives hope to all of us.

Good to hear mate, I just found it uncanny the position that you're in is almost identicle as what my sister was in 6 years ago.... It's a scary thing brain tumors but once you get past the hard part mate at the start you'll feel much more relief.

Just stay stong through it all and you'll beat this and I'll be looking forward to reading your post when you do :-)

cheers fella

 

[adelaideblue]

charles teo is a neurosurgeon in australia that is well know for curing case where no other surgeon would attempt to operate. thought i'd just pass it on as a reference. hope all goes well for u.

 

[GStar]

Amazed and gutted by your post Billy.

You've got a fantastic attitude and i've got my fingers crossed for you mate.

Best wishes to you and your family.

 

[-dabz-]

Mate I don't physically know what your going through but my sister had a brain tumor about 6 years ago when she was 24, she was having trouble with her eyes and the doctors and optician put it down as poor eye sight till half a year later they noticed the tumor after she gave birth to my niece (her second child).

I'm not going to lie but it scared us all as it was potential life threatening I don't know what grade it was but it was pretty damn severe, she also went Hope Hospital but they could only remove part of the tumor leaving the root and a possibility of it regrowing again which it did a few months back but she was took into radiotherapy and all seems ok now with her, she seems healthy and enjoying her life at 30 years old with her 2 great kids. She will obviously have to keep visiting the hospital everytime it regrows to have more radiotherapy but obvioulsy thats nothing when you go through what your going through now...

Guess all I'm saying is just get through all this mate I can imagine its scary as hell for you and I hope and believe you'll get through it and when you do pal you'll be at home in no time with your step kids and hopefully you and your missus will be expecting a child soon....

Hang in there mate.

Ive got a feeling I was in the Neurology ward Hope at the time, and I think I met you there. Was it about nov 2004? I was in for a long standing back problem and I remember talking to a guy who had come to see his sister in the same ward. He told me how scared he was for her, she was only in her twenties and had children too. I remember having a good heart to heart with this guy and I could see the heartache in his eyes. Was it you? It was a very moving experience and made me realise my own problem was fuck all. If it is you, Im glad to hear that she is doing well because Ive never forgot that conversation and have often wondered since how she went on.

 

[Justin Bieber]

Keep going pal like tuesday night, be positive and believe you can win.

Best of luck to you.

JB

 

[bumbleblue]

All the best to you Blue, and your family and mates too. Thinking of you all.

 

[Tricky Dickys Right Foot Shot]

Mate I don't physically know what your going through but my sister had a brain tumor about 6 years ago when she was 24, she was having trouble with her eyes and the doctors and optician put it down as poor eye sight till half a year later they noticed the tumor after she gave birth to my niece (her second child).

I'm not going to lie but it scared us all as it was potential life threatening I don't know what grade it was but it was pretty damn severe, she also went Hope Hospital but they could only remove part of the tumor leaving the root and a possibility of it regrowing again which it did a few months back but she was took into radiotherapy and all seems ok now with her, she seems healthy and enjoying her life at 30 years old with her 2 great kids. She will obviously have to keep visiting the hospital everytime it regrows to have more radiotherapy but obvioulsy thats nothing when you go through what your going through now...

Guess all I'm saying is just get through all this mate I can imagine its scary as hell for you and I hope and believe you'll get through it and when you do pal you'll be at home in no time with your step kids and hopefully you and your missus will be expecting a child soon....

Hang in there mate.

Ive got a feeling I was in the Neurology ward Hope at the time, and I think I met you there. Was it about nov 2004? I was in for a long standing back problem and I remember talking to a guy who had come to see his sister in the same ward. He told me how scared he was for her, she was only in her twenties and had children too. I remember having a good heart to heart with this guy and I could see the heartache in his eyes. Was it you? It was a very moving experience and made me realise my own problem was fuck all. If it is you, Im glad to hear that she is doing well because Ive never forgot that conversation and have often wondered since how she went on.

I think it was late 2005 mate but am not sure though, if it would of been anyone you had spoken to it might of been my brother I was only 17/18 at the time but my brother was around 31/32 and my brother is the kinda guy that tends to have heart to hearts with people especially when family is involved....

 

[Stuart]

Hello all.
I have recently been diagnosed with one of these.
not really sure why i'm putting it on here, i'm not looking for sympathy or anything, i suppose i just need to write it down somewhere, so here we go.

a month ago i was taken into hospital with very strange confused like symptoms, kind of like i was having a nervous breakdown or something. after scans at Tameside revealed there was something on my brain, it was down to hope hospital 5 days later for the operation to remove it, and get it under the microscope.
Turns out its a grade 4 tumour, which is as bad as they get, and although the surgeon did remove everything he could see, its a really aggressive tumour, and will definately come back again.
so now i'm waiting basically. got an appointment at some point next week for my facial mould for when i'm having radiotherapy, and then waiting for my actual treatment to start. got 6 weeks of chaemotherapy and radiotherapy, got to have that everyday, and then re-scan to make sure its gone for now.

I'm 28 years old, got no kids of my own (2 stepkids) although we are doing everything in the next 4 weeks to get pregnant that we can ;D, although i will definately freeze it if not.
I'm currently planning a very quick wedding which everybody is helping out with as i was not planning on marriage yet, so there are people helping out all over the place.
Unfortunately for me my house and life aren't insured, so i've paid a mortgage for the last 5 years for bugger all, although my best mate has promised to keep it tenanted for me when i'm not here, so that the mrs and kids have got at least a little something to get on the ladder.
friends and family are amazing. My best mate has well stepped up, he's ran me, my girlfriend and my mum round everywhere. he's not missed one appointment. the rest of my friends have been ace, one is fixing my car up to sell it as i've been banned from driving since surgery (2 years), another offered me his Noel Gallagher ticket for free, a load of people throwing in for the wedding etc, its been fantastic, and makes me realise how important i am to people.
Man City have been fantastic, this was actually organised on mancityfans.net which i'm a regular;

http://www.youtube.com/watch?v=_X1NOrRMYJs&feature=feedu

Slim sorted that out for me which was amazing, and there is a little more going on behind the scenes at City that i can't say right now, but you'll probably see at some point, thanks to Tudor, Danny Wilson and my old man for that. I honestly couldn't ask for anymore tbh.

the way i'm feeling now is quite unreal. i feel amazing. no pain, no worries, etc. it'll be hard to imagine how i'm actually going to get ill, how its gonna feel an that, how quickly will i deteriorate etc? madness. i honestly think they've made a mistake. a misdiagnosis or summat? unbelievable.

I will keep you updated as we go on in this thread with how treatment etc goes and what not.

thanks

Sorry to read this Billy.
I've had stage IV tumours (five of the fuckers) growing out of my spine. I've also had an aggressive stage IIIB (above and below the diaphragm) Lymphatic cancer on three separate occasions. My treatment over the years has been high dosage chemotherapy (never had radiotherapy) and two transplants. The doctors gave me a 20% chance of surviving cancer no.4.
But from day one, I was up for the biggest scrap of my life. I thought to myself that as long as the doctors were willing to treat me by giving me chemo, and to start looking for suitable donors, then I had a chance. Even if it was only 5%, it's still a chance. Don't let the fucker beat you, fight it every step of the way. You're a young lad, you'll be strong enough to deal with this.
Positivity is the key. Even on the dark days I always stayed positive. Remember that.
I also read up on as much information as I could, about each cancer, each type of chemotherapy, each type of medication I was prescribed. So that I knew what was coming regarding side effects, so I could prepare myself, both physically and mentally.
If I can beat it then I know you will too.
We're both Blues, and we're both Mancs..........these cancers will never stand a chance.

 

[billy_big_spuds]

Hello all.
I have recently been diagnosed with one of these.
not really sure why i'm putting it on here, i'm not looking for sympathy or anything, i suppose i just need to write it down somewhere, so here we go.

a month ago i was taken into hospital with very strange confused like symptoms, kind of like i was having a nervous breakdown or something. after scans at Tameside revealed there was something on my brain, it was down to hope hospital 5 days later for the operation to remove it, and get it under the microscope.
Turns out its a grade 4 tumour, which is as bad as they get, and although the surgeon did remove everything he could see, its a really aggressive tumour, and will definately come back again.
so now i'm waiting basically. got an appointment at some point next week for my facial mould for when i'm having radiotherapy, and then waiting for my actual treatment to start. got 6 weeks of chaemotherapy and radiotherapy, got to have that everyday, and then re-scan to make sure its gone for now.

I'm 28 years old, got no kids of my own (2 stepkids) although we are doing everything in the next 4 weeks to get pregnant that we can ;D, although i will definately freeze it if not.
I'm currently planning a very quick wedding which everybody is helping out with as i was not planning on marriage yet, so there are people helping out all over the place.
Unfortunately for me my house and life aren't insured, so i've paid a mortgage for the last 5 years for bugger all, although my best mate has promised to keep it tenanted for me when i'm not here, so that the mrs and kids have got at least a little something to get on the ladder.
friends and family are amazing. My best mate has well stepped up, he's ran me, my girlfriend and my mum round everywhere. he's not missed one appointment. the rest of my friends have been ace, one is fixing my car up to sell it as i've been banned from driving since surgery (2 years), another offered me his Noel Gallagher ticket for free, a load of people throwing in for the wedding etc, its been fantastic, and makes me realise how important i am to people.
Man City have been fantastic, this was actually organised on mancityfans.net which i'm a regular;

http://www.youtube.com/watch?v=_X1NOrRMYJs&feature=feedu

Slim sorted that out for me which was amazing, and there is a little more going on behind the scenes at City that i can't say right now, but you'll probably see at some point, thanks to Tudor, Danny Wilson and my old man for that. I honestly couldn't ask for anymore tbh.

the way i'm feeling now is quite unreal. i feel amazing. no pain, no worries, etc. it'll be hard to imagine how i'm actually going to get ill, how its gonna feel an that, how quickly will i deteriorate etc? madness. i honestly think they've made a mistake. a misdiagnosis or summat? unbelievable.

I will keep you updated as we go on in this thread with how treatment etc goes and what not.

thanks

Sorry to read this Billy.
I've had stage IV tumours (five of the fuckers) growing out of my spine. I've also had an aggressive stage IIIB (above and below the diaphragm) Lymphatic cancer on three separate occasions. My treatment over the years has been high dosage chemotherapy (never had radiotherapy) and two transplants. The doctors gave me a 20% chance of surviving cancer no.4.
But from day one, I was up for the biggest scrap of my life. I thought to myself that as long as the doctors were willing to treat me by giving me chemo, and to start looking for suitable donors, then I had a chance. Even if it was only 5%, it's still a chance. Don't let the fucker beat you, fight it every step of the way. You're a young lad, you'll be strong enough to deal with this.
Positivity is the key. Even on the dark days I always stayed positive. Remember that.
I also read up on as much information as I could, about each cancer, each type of chemotherapy, each type of medication I was prescribed. So that I knew what was coming regarding side effects, so I could prepare myself, both physically and mentally.
If I can beat it then I know you will too.
We're both Blues, and we're both Mancs..........these cancers will never stand a chance.

Cheers for that mate, howe long have you been dianosed with it?
that is the exact way i've been living since. positive.