Incurable Brain Tumours

Good luck with your treatment, it sounds like you have some great people around you who will stand with you in your fight. I hope you can also draw strength from the replies to your post and stay as positive as you can. All the very best to you and your famil,.you are one brave man.
 
billy_big_spuds said:
Stuart said:
billy_big_spuds said:
Hello all.
I have recently been diagnosed with one of these.
not really sure why i'm putting it on here, i'm not looking for sympathy or anything, i suppose i just need to write it down somewhere, so here we go.

a month ago i was taken into hospital with very strange confused like symptoms, kind of like i was having a nervous breakdown or something. after scans at Tameside revealed there was something on my brain, it was down to hope hospital 5 days later for the operation to remove it, and get it under the microscope.
Turns out its a grade 4 tumour, which is as bad as they get, and although the surgeon did remove everything he could see, its a really aggressive tumour, and will definately come back again.
so now i'm waiting basically. got an appointment at some point next week for my facial mould for when i'm having radiotherapy, and then waiting for my actual treatment to start. got 6 weeks of chaemotherapy and radiotherapy, got to have that everyday, and then re-scan to make sure its gone for now.

I'm 28 years old, got no kids of my own (2 stepkids) although we are doing everything in the next 4 weeks to get pregnant that we can ;D, although i will definately freeze it if not.
I'm currently planning a very quick wedding which everybody is helping out with as i was not planning on marriage yet, so there are people helping out all over the place.
Unfortunately for me my house and life aren't insured, so i've paid a mortgage for the last 5 years for bugger all, although my best mate has promised to keep it tenanted for me when i'm not here, so that the mrs and kids have got at least a little something to get on the ladder.
friends and family are amazing. My best mate has well stepped up, he's ran me, my girlfriend and my mum round everywhere. he's not missed one appointment. the rest of my friends have been ace, one is fixing my car up to sell it as i've been banned from driving since surgery (2 years), another offered me his Noel Gallagher ticket for free, a load of people throwing in for the wedding etc, its been fantastic, and makes me realise how important i am to people.
Man City have been fantastic, this was actually organised on mancityfans.net which i'm a regular;

http://www.youtube.com/watch?v=_X1NOrRMYJs&feature=feedu

Slim sorted that out for me which was amazing, and there is a little more going on behind the scenes at City that i can't say right now, but you'll probably see at some point, thanks to Tudor, Danny Wilson and my old man for that. I honestly couldn't ask for anymore tbh.

the way i'm feeling now is quite unreal. i feel amazing. no pain, no worries, etc. it'll be hard to imagine how i'm actually going to get ill, how its gonna feel an that, how quickly will i deteriorate etc? madness. i honestly think they've made a mistake. a misdiagnosis or summat? unbelievable.

I will keep you updated as we go on in this thread with how treatment etc goes and what not.

thanks

Sorry to read this Billy.
I've had stage IV tumours (five of the fuckers) growing out of my spine. I've also had an aggressive stage IIIB (above and below the diaphragm) Lymphatic cancer on three separate occasions. My treatment over the years has been high dosage chemotherapy (never had radiotherapy) and two transplants. The doctors gave me a 20% chance of surviving cancer no.4.
But from day one, I was up for the biggest scrap of my life. I thought to myself that as long as the doctors were willing to treat me by giving me chemo, and to start looking for suitable donors, then I had a chance. Even if it was only 5%, it's still a chance. Don't let the fucker beat you, fight it every step of the way. You're a young lad, you'll be strong enough to deal with this.
Positivity is the key. Even on the dark days I always stayed positive. Remember that.
I also read up on as much information as I could, about each cancer, each type of chemotherapy, each type of medication I was prescribed. So that I knew what was coming regarding side effects, so I could prepare myself, both physically and mentally.
If I can beat it then I know you will too.
We're both Blues, and we're both Mancs..........these cancers will never stand a chance.
Cheers for that mate, howe long have you been dianosed with it?
that is the exact way i've been living since. positive.

It's the best way mate. Facing a situation like this with lots of positivity.

I was first diagnosed in 2005. I've been in remission two years and counting. I still go to five different departments at The Christie (I'm a complex fucker..haha) fairly regular for check ups, scans, bloods, observations, and other bits n' pieces regarding side effects of all the treatments I've had. They keep a close eye on me which I'm happy about. It's a quality hospital, can't fault it in any way.
 
My missus is a nurse on a critical care and high dependency ward at north manchester, she is 110% convinced that people with a positive attitude are always the most successful for overcoming such illness. Your outlook towards this illness is just as important as any medicine. Stay strong blue and best wishes.
 
Nothing really I can say that hasnt been said by others, so i'll just say it again. Your an incredibly brave soul. I'm not sure how I'd be able to deal with something like this and you probably don't know until your in the situation but for you to have the positivity you have is commendable.

If your fit and well and able, theres a bluemoon party on the horizon. I'm sure im not alone in wanting to buy you a beer and shake your hand.

Wish you the very best.
 
Good luck with all the treatment,it is important to stay positive and your mindset is excellent.My thoughts and best wishes are with you to support your challenges ahead,I know you will fight them.
 
Good luck to you and my best wishes. I'm a similar age and have barely started living yet due to problems of my own but nothing nearly as bad as what you have.

Stay positive and fight the illness, there are countless stories of people who have done the "impossible" and beaten aggressive illnesses like this.
 
Great to see your positivity mate, it really is inspiring. Hope you continue to stay strong and fight through this.
 

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