Prostate cancer

r.soleofsalford said:
Hi Gary, I’m glad to hear you have had good news. I wouldn’t have know anything about this thread until I searched. I’ve had a problem urinating every hour ish been for a MRI scan and been told they have found lesions. Going in for a biopsy on 8th November. I thought the hourly urination was part of my diabetes. This is to tell anyone who has problems with a change of the frequency in urination to GET IT CHECK OUT PROMPTLY.
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Hope all goes ok mate
 
A57 the snake said:
I had my PSA results today at the Christie as it’s six months on from my radiotherapy and we’re so pleased it’s back down to 0.1 psa.
A huge relief it looks like they were bang on target with the radiotherapy, after the prostectomy then 18 months later to need the radiotherapy it’s been a long road and now I’m finally looking at the light at the end of the tunnel. Go back in 6 months for repeat psa tests then hopefully go in remission again, for the family it’s such relief they’ve been through enough especially my two daughters, emotional day to be honest.
So goes without saying a big thank you to each and everyone of you in your support for not just myself but others who are going through this dreadful disease.
As I’ve said before we’re in this together and we will keep going !!!!
We will carry each other through this .

It’s sometimes said city fans have no class well I beg any visitors on this site to go through this thread you will come back with a different view I guarantee it.

Ladies and Gentlemen you are the best of the best , sorry for the late post it’s been a long day for us.

Good Luck to all on here dealing with this we keep going ,

Gary.
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Great news, all the best mate
 
r.soleofsalford said:
Hi Gary, I’m glad to hear you have had good news. I wouldn’t have know anything about this thread until I searched. I’ve had a problem urinating every hour ish been for a MRI scan and been told they have found lesions. Going in for a biopsy on 8th November. I thought the hourly urination was part of my diabetes. This is to tell anyone who has problems with a change of the frequency in urination to GET IT CHECK OUT PROMPTLY.
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Hi pal , hoping it’s not PC but you have plenty of time to get this sorted one way or another. Don’t google anything other the than NHS . Wishing you the best as I said time is crucial and you’ve acted all the very best and keep posting.
 
Had my last radiotherapy session today. Everything feels good,no obvious side effects so far, apart from slightly loose bowels which is probably down to the daily micro enema I’ve been having to take!

The radiologists at The Christie Private Care have been superb and my treatment in general has been first class. Just 18 months of hormone treatment to go, but it feels great to get the main treatment out of the way
 
I’ll add some humour to the thread if that’s ok …. So today I’m in the car with my 17 yr old daughter going into Glossop and the car phone rings ….
Hello is that Gary ? Yes , it’s your GP I’ve read the prescription notes from Christie’s and there’s two months of viagra waiting in Tesco pharmacy for you , do you need anything else ?
No thanks I said . Daughter replied Dad you’re stopped at a green light !!

Lads seriously ED will happen probably will happen with treatment for prostate cancer but you will be looked after I’ve got a year supply of the stuff.
Take care all and good luck.
 
RobMCFC said:
Had my last radiotherapy session today. Everything feels good,no obvious side effects so far, apart from slightly loose bowels which is probably down to the daily micro enema I’ve been having to take!

The radiologists at The Christie Private Care have been superb and my treatment in general has been first class. Just 18 months of hormone treatment to go, but it feels great to get the main treatment out of the way
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Good news mate
 
Wes streeting is asking the NHS to look at the possibility of lowering the age of PSA testing, especially for those who have a history in their families of prostate cancer , on the Back of Sir Chris Hoys sad story.
Although this is welcomed it doesn’t go far enough as I know for a fact that in my local GP practice I’ve had friends and work colleagues who have been refused PSA tests as they have had no symptoms. I know PSA testing can carry false positives, but surely it’s better to have a false positive than never to be checked until symptoms appear that can be found to be too late in many cases .
My story is that I was 52 when diagnosed with no symptoms . The oncologist from Christie’s was adamant that I’d had this for a few years due to the advancement of it.
Every man should be allowed to be tested from 45 upwards the financial costs of a false positive will far out way the full treatment what I’ve been luckily to have.
I’m emailing my MP to look into this hopefully it will bring more awareness into prostate cancer,
If these people could see the pain and emotional toil it takes on families in the diagnosis when it could have been prevented at an earlier stage hopefully things will change.
Sadly it’s too late for Sir Chris but it doesn’t mean it’s got to be too late for other Men.
 
A57 the snake said:
Wes streeting is asking the NHS to look at the possibility of lowering the age of PSA testing, especially for those who have a history in their families of prostate cancer , on the Back of Sir Chris Hoys sad story.
Although this is welcomed it doesn’t go far enough as I know for a fact that in my local GP practice I’ve had friends and work colleagues who have been refused PSA tests as they have had no symptoms. I know PSA testing can carry false positives, but surely it’s better to have a false positive than never to be checked until symptoms appear that can be found to be too late in many cases .
My story is that I was 52 when diagnosed with no symptoms . The oncologist from Christie’s was adamant that I’d had this for a few years due to the advancement of it.
Every man should be allowed to be tested from 45 upwards the financial costs of a false positive will far out way the full treatment what I’ve been luckily to have.
I’m emailing my MP to look into this hopefully it will bring more awareness into prostate cancer,
If these people could see the pain and emotional toil it takes on families in the diagnosis when it could have been prevented at an earlier stage hopefully things will change.
Sadly it’s too late for Sir Chris but it doesn’t mean it’s got to be too late for other Men.
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Just to add that there is an interview with Chris Hoy on bbc1 8 o'clock tonight. I've just realised football, I-player later then.
 
A57 the snake said:
Wes streeting is asking the NHS to look at the possibility of lowering the age of PSA testing, especially for those who have a history in their families of prostate cancer , on the Back of Sir Chris Hoys sad story.
Although this is welcomed it doesn’t go far enough as I know for a fact that in my local GP practice I’ve had friends and work colleagues who have been refused PSA tests as they have had no symptoms. I know PSA testing can carry false positives, but surely it’s better to have a false positive than never to be checked until symptoms appear that can be found to be too late in many cases .
My story is that I was 52 when diagnosed with no symptoms . The oncologist from Christie’s was adamant that I’d had this for a few years due to the advancement of it.
Every man should be allowed to be tested from 45 upwards the financial costs of a false positive will far out way the full treatment what I’ve been luckily to have.
I’m emailing my MP to look into this hopefully it will bring more awareness into prostate cancer,
If these people could see the pain and emotional toil it takes on families in the diagnosis when it could have been prevented at an earlier stage hopefully things will change.
Sadly it’s too late for Sir Chris but it doesn’t mean it’s got to be too late for other Men.
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A routine blood test with PSA check showing elevated levels turned out to be a great indicator of prostate cancer in my case. Like you say, so what if there are some false positives, people are better in the system where they can move on to the next levels of checks to rule cancer in/out.

It will be all about money and capacity of course. Is the NHS set up to do loads of routine blood tests and then follow-up scans? Probably not.
 
Also a note to anyone who wants a test, as I've said previously just tell them any bollox to get it done . It could be the best lie you will ever tell . It's in the family or your pissing all night. I got to the point where my doctor was saying the blood test could be a false positive so they won't do it . But they said I could go and pay for a blood test. So I then said so if that's a positive/ false positive where do i go from there . You just have to have a physical examination first. So tell them what they need to hear to get it .
 
RobMCFC said:
A routine blood test with PSA check showing elevated levels turned out to be a great indicator of prostate cancer in my case. Like you say, so what if there are some false positives, people are better in the system where they can move on to the next levels of checks to rule cancer in/out.

It will be all about money and capacity of course. Is the NHS set up to do loads of routine blood tests and then follow-up scans? Probably not.
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Rob
I had quite a few symptoms, urgency, dribble, getting up in the night to pee and when tested had a high PSA (17). Then biopsy and confirmed prostate cancer.

There is a problem relying on PSA as a scanning technique. You can get plenty of false positives. It’s a very difficult decision for clinicians to make. Do you follow up every raised PSA result? How much would that cost the NHS?

When I was diagnosed, my best mate who was quite a bit younger decided to get tested. He had no symptoms at all, a low PSA, but had biopsies which confirmed prostate cancer. Had treatment with HIFU, and is now clear.

It’s a real dilemma for the NHS.
 
CityFil said:
Rob
I had quite a few symptoms, urgency, dribble, getting up in the night to pee and when tested had a high PSA (17). Then biopsy and confirmed prostate cancer.

There is a problem relying on PSA as a scanning technique. You can get plenty of false positives. It’s a very difficult decision for clinicians to make. Do you follow up every raised PSA result? How much would that cost the NHS?

When I was diagnosed, my best mate who was quite a bit younger decided to get tested. He had no symptoms at all, a low PSA, but had biopsies which confirmed prostate cancer. Had treatment with HIFU, and is now clear.

It’s a real dilemma for the NHS.
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Yes, I understand the issues for the NHS and said that in my post. In my case, the PSA was a 100% indicator of Prostate Cancer.

Interesting about your mate. With no symptoms and a low PSA, why did he have further scans and a biopsy? There must have been something that made the doctors want to go that far. Was it a physical exam? No harm in having both if that’s what it takes but yes, it will be a big cost to the NHS.

But then they regularly screen for bowel cancer (from 54) and breast cancer (50?). Why should prostate cancer be any different? Let’s face it, there is currently no screening programme for this - it’s totally reliant on people asking the doctor, which is what happened in my case.
 
Rob
My mate had private health insurance and could have all the tests he needed and yes I think it may have been a digital rectal examination and then a scan, but can’t recall accurately. I’ll try to find out.
 
RobMCFC said:
Yes, I understand the issues for the NHS and said that in my post. In my case, the PSA was a 100% indicator of Prostate Cancer.

Interesting about your mate. With no symptoms and a low PSA, why did he have further scans and a biopsy? There must have been something that made the doctors want to go that far. Was it a physical exam? No harm in having both if that’s what it takes but yes, it will be a big cost to the NHS.

But then they regularly screen for bowel cancer (from 54) and breast cancer (50?). Why should prostate cancer be any different? Let’s face it, there is currently no screening programme for this - it’s totally reliant on people asking the doctor, which is what happened in my case.
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www.nhs-galleri.org

Detecting cancer early

The NHS is trialling a new blood test to detect cancer, often before symptoms appear. Volunteer to take part if you are invited.
www.nhs-galleri.org www.nhs-galleri.org
I was part of this trial and gave my last bloods in July. I received a phonecall in August to inform me that they had detected a dna signal from my prostate and referred me for further investigation, within three days. Finger, bloods mri, psa at 91.5. So hopefully the trial maybe a future screening option. I had no symptoms and to my knowledge no family history.
 
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well i had my prostatectomy yesterday and ive just got home.feeling a bit sore and tryin g to get used to catheter but im having that removed next monday so not the end of the world.ive got to say ive been really impressed by the nhs from the moment my psa came back raised.it shows the importance of early testing.they said they think its contained within the prostate but ill get the results in the new year.
 
city saint said:
well i had my prostatectomy yesterday and ive just got home.feeling a bit sore and tryin g to get used to catheter but im having that removed next monday so not the end of the world.ive got to say ive been really impressed by the nhs from the moment my psa came back raised.it shows the importance of early testing.they said they think its contained within the prostate but ill get the results in the new year.
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