General / Mental Health Support Thread

kaz7 said:
Thanks Seb , unfortunately i am on my own here so have to jolly myself on best as i can . I have tried support groups over the three decades i have been ill but i find them depressing and i just cant offer support in return , my mental health is such that i go into my safe space and stay there till it passes a bit , i can lie still in bed for hours in the day not moving as i think something bad will happen if i take the sheet off from over my head . It is a really weird experience but very familiar territory

Thanks for the suggestions though x
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I can understand that. They are not for everyone.

I would suggest an online support group, as they often have a less intrusive and onerous dynamic for those that don’t find local support groups helpful, but you have probably tried those, as well. And, anyway, you kind of have one here. :-)

Please keep sharing in here if it helps at all. We want to provide encouragement and affirmation.
 
dronefromsector7G said:
I’ve got a few new medical issues over the last few years to add to my mental health ones. Currently awaiting blood test results including PSA test for some prostatic symptoms. It’s hard to stay positive all the time and even putting shit jokes online can only go so far
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You always have me , lol x
 
dronefromsector7G said:
I’ve got a few new medical issues over the last few years to add to my mental health ones. Currently awaiting blood test results including PSA test for some prostatic symptoms. It’s hard to stay positive all the time and even putting shit jokes online can only go so far
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Sorry to hear this, drone. As a fellow sufferer of poor health (mental all my life and physical in the last five years or so) I am here to chat if that would ever help with maintaining positivity.

I hope the test results lead to some relief for you, either way. I know—at least for me—the not knowing what (if anything) was wrong, after batteries of tests, was in some ways worse than finally knowing once I got a confident diagnosis.

Everyone is different, though, so I just hope whatever would be best for you specifically occurs.
 
kaz7 said:
Been up since 1am in severe pain , even considered going to casualty and asking for morphine as nothing i have touched it, cried a lot , this is me now , worse than i ever thought , a new phase my consultant says , oh joy . I watched a german drama all night to pass the time and something to concentrate on , dont want to go another how ever many years like this
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You shouldn't have to go through that.
I know this might sound a bit of a pathetic suggestion but have you tried meditation/relaxation apps?
Night time is always the worst to be in pain, and can feel extremely lonely.
 
PinkFinal said:
My brother is helping me.
I might ring the Samaritans tonight.
Thank you sincerely to everyone who has replied to me on this thread it's a great help.
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The fact there are dozens of strangers on an online forum reaching out should let you know there's always support there for you, take things day by day and time will heal, it sounds like a cliche but it's so true.

Stay strong, and that goes for anyone using this thread as a conduit.
 
kaz7 said:
Thanks Seb , unfortunately i am on my own here so have to jolly myself on best as i can . I have tried support groups over the three decades i have been ill but i find them depressing and i just cant offer support in return , my mental health is such that i go into my safe space and stay there till it passes a bit , i can lie still in bed for hours in the day not moving as i think something bad will happen if i take the sheet off from over my head . It is a really weird experience but very familiar territory

Thanks for the suggestions though x
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I know that place.
 
kaz7 said:
Every time i see you post i hope it is to say that they have found a,way to beat long covid , hang on in there x
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Worse than ever. Most of the day is spent lying on the couch now. I'm back at the clinic, though, and they're referring me here there and everywhere. Got a month free pass for swimming baths, but I can't get there any more.
Have you ever tried cannabis as medication, Kaz? Not that I'm advising it, as it's illegal and not for everyone. I go all day suffering, but after tea I have a joint..no more suffering. It's like my body breaks free. I now look forward to that relief (not a good thing as weed is so fucking expensive, "more-ish" and I have to buy it from criminals. I'm now in a lot of debt because of it). I'm trying to work out whether it's just a psychological thing, like a placebo, or is it really having an effect on the Long COVID issues.
 
Marklr said:
Worse than ever. Most of the day is spent lying on the couch now. I'm back at the clinic, though, and they're referring me here there and everywhere. Got a month free pass for swimming baths, but I can't get there any more.
Have you ever tried cannabis as medication, Kaz? Not that I'm advising it, as it's illegal and not for everyone. I go all day suffering, but after tea I have a joint..no more suffering. It's like my body breaks free. I now look forward to that relief (not a good thing as weed is so fucking expensive, "more-ish" and I have to buy it from criminals. I'm now in a lot of debt because of it). I'm trying to work out whether it's just a psychological thing, like a placebo, or is it really having an effect on the Long COVID issues.
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i have thought about it but never tried it , my brother found it very good for his MS , he knew a few criminals lol. I take valium when i need my muscles relaxing , didnt help much last night but then nothing really did , just a bad nite, hopefully tonite will be better
 
kaz7 said:
i have thought about it but never tried it , my brother found it very good for his MS , he knew a few criminals lol. I take valium when i need my muscles relaxing , didnt help much last night but then nothing really did , just a bad nite, hopefully tonite will be better
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Problem with weed is, if you try it, and it works, and you LIKE it....it costs a lot! The doctor won't give you a prescription for it. Snide. haha.
I hope you get a better night tonight. I never know what causes the bad nights....they just happen. The restless leg syndrome is a double whammy for me....that drives me mad at times. I want to have a little lie down because of the Long Covid, but the restless leg syndrome laughs at that; You will NOT fall asleep! Just as I start to drift off, it kicks in. Like a mad tickle down the spine into the legs. Sick of it all, Kaz. I've been referred to therapy as I mentioned that sometimes i don't want to live. It's obvious those thoughts will cross our minds, isn't it?
 
Marklr said:
Problem with weed is, if you try it, and it works, and you LIKE it....it costs a lot! The doctor won't give you a prescription for it. Snide. haha.
I hope you get a better night tonight. I never know what causes the bad nights....they just happen. The restless leg syndrome is a double whammy for me....that drives me mad at times. I want to have a little lie down because of the Long Covid, but the restless leg syndrome laughs at that; You will NOT fall asleep! Just as I start to drift off, it kicks in. Like a mad tickle down the spine into the legs. Sick of it all, Kaz. I've been referred to therapy as I mentioned that sometimes i don't want to live. It's obvious those thoughts will cross our minds, isn't it?
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I get restless legs sometimes , i think that is a thing that would drive you to suicide in the nite , awful thing it is , my mum had it bad so i dont know if it has a genetic link or not

Hope therapy helps you lovely , i saw a psyciatrist ( sp) for a year when i was first ill , it is such a hard thing to come to terms with , i was early thirties when i got ME and fibro , i dont expect to be able to put up with it for long now it has got even worse , i cant live like this , havent been able to do my daily walk for six months or so now, the four walls are closing in gradually
 
Marklr said:
Problem with weed is, if you try it, and it works, and you LIKE it....it costs a lot! The doctor won't give you a prescription for it. Snide. haha.
I hope you get a better night tonight. I never know what causes the bad nights....they just happen. The restless leg syndrome is a double whammy for me....that drives me mad at times. I want to have a little lie down because of the Long Covid, but the restless leg syndrome laughs at that; You will NOT fall asleep! Just as I start to drift off, it kicks in. Like a mad tickle down the spine into the legs. Sick of it all, Kaz. I've been referred to therapy as I mentioned that sometimes i don't want to live. It's obvious those thoughts will cross our minds, isn't it?
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kaz7 said:
I get restless legs sometimes , i think that is a thing that would drive you to suicide in the nite , awful thing it is , my mum had it bad so i dont know if it has a genetic link or not

Hope therapy helps you lovely , i saw a psyciatrist ( sp) for a year when i was first ill , it is such a hard thing to come to terms with , i was early thirties when i got ME and fibro , i dont expect to be able to put up with it for long now it has got even worse , i cant live like this , havent been able to do my daily walk for six months or so now, the four walls are closing in gradually
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I’m sure you’ve tried everything for the restless legs but magnesium and iron supplements help me keep it at bay, plus of course avoiding alcohol, caffeine and sugary snacks too close to bedtime.
 
kaz7 said:
I get restless legs sometimes , i think that is a thing that would drive you to suicide in the nite , awful thing it is , my mum had it bad so i dont know if it has a genetic link or not

Hope therapy helps you lovely , i saw a psyciatrist ( sp) for a year when i was first ill , it is such a hard thing to come to terms with , i was early thirties when i got ME and fibro , i dont expect to be able to put up with it for long now it has got even worse , i cant live like this , havent been able to do my daily walk for six months or so now, the four walls are closing in gradually
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My RLS is the genetic version. I had it a little as a kid but it came back after i reached 40. Fucking torture at times. I'm on ropinirole and gabapentin for it...it JUST helps. Just. Sometimes not at all.
Yeah...my walks have become less. A good walk in the day usually helps with my mood, but my back and legs now ache too much. It gets so depressing repeating the same shit every day, doesn't it? I've seen every Four in a Bed episode now... why? I'll get busy with the garden again soon. That's good therapy.
 
journolud said:
I’m sure you’ve tried everything for the restless legs but magnesium and iron supplements help me keep it at bay, plus of course avoiding alcohol, caffeine and sugary snacks too close to bedtime.
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i agree on the magnesium, i take a high dose three times a day and i dont get the legs and arms going off so much these days . When i was first ill there was limited evidence that magnesium injections would help so i had those every couple of weeks , painful as hell and my weight dropped so much they were hitting the hip bones with the needle so i stopped having it
 
Marklr said:
My RLS is the genetic version. I had it a little as a kid but it came back after i reached 40. Fucking torture at times. I'm on ropinirole and gabapentin for it...it JUST helps. Just. Sometimes not at all.
Yeah...my walks have become less. A good walk in the day usually helps with my mood, but my back and legs now ache too much. It gets so depressing repeating the same shit every day, doesn't it? I've seen every Four in a Bed episode now... why? I'll get busy with the garden again soon. That's good therapy.
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Getting out in the garden will be nice in the summer , fresh air is good
 
I have occasional restless legs and the last time it was really bad I bought this stuff, rubbed it on my legs before bed and it really helped. Might be worth considering for those who suffer - it's only a tenner and worst case scenario is you're no better but your legs smell nice.

 
Try cbd oils mark.... Two types one with high thc content and other without. Can be bought online, with a bit of investigation you could find a fair price online to give you the relief you need.

God bless bud.
 
Lauz9888 said:
I have occasional restless legs and the last time it was really bad I bought this stuff, rubbed it on my legs before bed and it really helped. Might be worth considering for those who suffer - it's only a tenner and worst case scenario is you're no better but your legs smell nice.

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My missus uses a magnesium cream (as she has occasional back pain from an injury when she was in uni) and I can confirm she smells like cinnamon bun icing.
 
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