Prostate cancer

I had the radical prostatectomy in November it was a slow recovery at first but seem to be pretty good and my latest psa came back undetectable so all good. The only problems I’m having is on the erection side which is getting better but I think viagra is going to be my friend. The wife has been celebrating she’s had 8 months off
 
A57 the snake said:
So finally after many months of appointments and Check ups I on Thursday got diagnosed with prostate cancer , this might sound a bit mad but I’m now finally relieved that it’s now done it’s taken a while to get this all sorted and I know I got back to the Jack grealish thread when I mentioned this . Unfortunately for someone of my age (53) on Wednesday it’s an aggressive form but I’m under stepping hill and Christie’s now so I’m in good hands. If anyone has any experience of this it’d be nice if it’s shared either on here or a pm. I’m ok even though I always had a bad feeling of the final diagnosis it’s a shock that the Gleeson score was quite aggressive I’ll fight this all the bloody way . I’m grateful I’ve got great family and friends around me , please don’t take this as a sympathy post more of any advice and experience in this is always welcome.
So there it is I’m type of bloke whose pretty open with things and this on here will help .
Finally please anyone of you who’s getting towards the age of 50 please, please have a mot at your doctors/GP . Do not ignore this prostate cancer IS the silent assassin.
Take care all you and up blues.
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Wishing you and your family all the best at this difficult time.
 
tommybooth said:
Second consultation on the 22nd. Then it's make my mind up time. Hifu or wip it it. Only low grade stage 2. Psa dropped from 3.84 to 3.30.
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I asked my Oncologist about HIFU and he wasn’t very impressed with the long term results so wouldn’t recommend it, maybe consider LDR brachytherapy too when deciding .
Good luck with whatever route you choose.
 
Cassandra said:
Annual Review today, MRI shows no change in lesion. Prostate as a whole increased in size a little and PSA slightly raised at 4 but below 5.8 action level. So continue with active surveilance.

They also made me aware of a new initiative between Prostate Scotland and Scottish Premier Football League Trust to offer an 12 week exercise programme for men with prostate cancer at some local SPL grounds. My nearest is Kilmarnock and look into it and see what it is like. That came after I’d mentioned this thread as a good place for guys to share experiences and encourage each other.
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4.0 should be action level. Mine has dropped to 3.3 from a high of 3.84. Having hifu on the 8th of September to have the cancer burnt off.
 
Mancitydoogle said:
I asked my Oncologist about HIFU and he wasn’t very impressed with the long term results so wouldn’t recommend it, maybe consider LDR brachytherapy too when deciding .
Good luck with whatever route you choose.
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Don't fancy radio ot removal. Hifu for me. They are the only 3 options available in Oxford. Hour job and hopefully job done.
 
tommybooth said:
Don't fancy radio ot removal. Hifu for me. They are the only 3 options available in Oxford. Hour job and hopefully job done.
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If radio doesn't work you are fooked. At least with hifu they can give it another go and removal is available. With radio you cannot have it removed either. Too many 80 percent this 70 percent that 60 per cent etc this and you might get secondary cancer.
 
tommybooth said:
If radio doesn't work you are fooked.
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Not true. There are plenty of treatments that can slow the cancer down if radiotherapy doesn’t work.

I can’t imagine prostate removal is an option further down the line. It has to be done early in the overall process before the cancer has escaped the prostate. If you get to the stage where some treatment hasn’t worked, I don’t see how this would still be a viable option.

This is all my opinion based on what I’ve seen and read.
 
tommybooth said:
4.0 should be action level. Mine has dropped to 3.3 from a high of 3.84. Having hifu on the 8th of September to have the cancer burnt off.
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Different parts of the country use different protocols for “active surveillance”; here in SW Scotland they follow a Cambridge protocol which uses various criteria. So far as PSA levels are concerned they use the doubling time as the measure to consider action.
 
What concerns me is the Psa score clearly if it’s very high then it’s a nailed on certainty there is an issue not necessarily cancer I may add
In my case I initially scored over 13 and was told to expect cancer and fasttracked to the care of Stepping Hill
I was in the MRI scanner within a week and my prostrate was assessed as perfect for a 65 year old at the time no visible evidence and weight /mass perfect
They wanted to do a biopsy but in agreement with my assigned urologist it was deemed too invasive and decided on a new Psa just to check that came back as 3.4 and last March was 3.1
So I was discharged and now have a Psa every March. In my case I believe some one at Tameside Labs fucked up which wouldn’t surprise me and I experienced the worst 6 weeks as many on here are aware of through their own experiences and supporting me in mine
However I still question my actual reading over 3 below 4 but it seems as an indicator this is ok but not definitive which lends weight to not doing national screening
I believe they should by the way but I am surprised that a more accurate blood testing or similar test has yet to be developed or trialled
 
Chris Hoy in the news again today on his terminal cancer and forthcoming bike ride with Andy Murray, once again we are reminded that cancer can strike the best of us and Chris had a prostate diagnosis two years ago he sadly now has stage four colon cancer.
He still keeps going and prepares for a bike ride, a timely reminder to get your Prostrate checked lads and at any age at the first sign of something not quite right.
 
city saint said:
I had the radical prostatectomy in November it was a slow recovery at first but seem to be pretty good and my latest psa came back undetectable so all good. The only problems I’m having is on the erection side which is getting better but I think viagra is going to be my friend. The wife has been celebrating she’s had 8 months off
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And how many times have you got your own back and said "not tonight love I`ve got a headache". ;)
Thanks for your update.
 
Hi, not updated you all for a while. I am documenting my journey https://stevepriest.me.uk/i-still-have-cancer/ please give it a read.
I am on a doubling PSA rate of about 15 months which shouldn’t be too worrying. I had an MRI on Friday and, assuming it is still localised I think I’m going to have the radical prostatectomy. Obviously nervous about it but the way my brother neglected aspects of his health because of some fatalist bullshit notion that you have no control pissed me off so much that I am going to do anything that gets this sorted so I’m not going to be some burden to my family. I mean I’m probably going to burden them in some way but not with something as preventable as this.
I’ll let you know how things transpire.
 
chedlee said:
Hi, not updated you all for a while. I am documenting my journey https://stevepriest.me.uk/i-still-have-cancer/ please give it a read.
I am on a doubling PSA rate of about 15 months which shouldn’t be too worrying. I had an MRI on Friday and, assuming it is still localised I think I’m going to have the radical prostatectomy. Obviously nervous about it but the way my brother neglected aspects of his health because of some fatalist bullshit notion that you have no control pissed me off so much that I am going to do anything that gets this sorted so I’m not going to be some burden to my family. I mean I’m probably going to burden them in some way but not with something as preventable as this.
I’ll let you know how things transpire.
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Nice post on your blog, and well-written. Sorry to hear about your brother, and I understand your frustrations. Faced with such life-changing, life-limiting conditions, you’d like to think that people would make some changes that would make things a little easier for themselves. “When your times up, your times up” applies to being hit by a bus or caught in a terrorist attack, but not when you can actually change your lifestyle to help the medical professionals help you.

Best of luck if you go down the prostatectomy route. You are correct that you are lucky it was caught early and you have a chance to act. Hope it all works out and keep posting.
 
chedlee said:
Hi, not updated you all for a while. I am documenting my journey https://stevepriest.me.uk/i-still-have-cancer/ please give it a read.
I am on a doubling PSA rate of about 15 months which shouldn’t be too worrying. I had an MRI on Friday and, assuming it is still localised I think I’m going to have the radical prostatectomy. Obviously nervous about it but the way my brother neglected aspects of his health because of some fatalist bullshit notion that you have no control pissed me off so much that I am going to do anything that gets this sorted so I’m not going to be some burden to my family. I mean I’m probably going to burden them in some way but not with something as preventable as this.
I’ll let you know how things transpire.
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good luck mate hope all goes well
 
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