Rob Burrow

Bill said:
Feel for him . Bloody 37. I was diagnosed with MND July 2018 after 18 months of tests. I am fully reliant on my wife now for all every day life,i can do nothing for myself. That said i am ok in myself and am happy.
My worry for Rob is it's started in his bulbar area, usually lethal in months. My doc reiterated on Wednesday i am in my last 12 months of life,sad but I'm 65.not 37 ffs.

Oh and i told him he was chatting shit :)
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Good to see you’re still around mate.

Hope you carry on as long as possible and have quality in your life.
 
Was just finishing some work off so stuck this on in the background but I was transfixed (so had to write off my evening walk!).

My god that was heartbreaking.

What a brave blokes but what a supportive family (his daughter speaking about him broke me :( )
His pseronality and humanity shone through very brightly.
 
mackenzie said:
Bill has had some stick on here recently, but I'd just like to say that Bill is one of the most generous men I have ever had the privilege to meet.
Love you Bill xx
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@Bill getting stick? Hmm..not good. Leave him be, we need him to fulfil his job of thinking up ridiculous threads, which he is excellent at.
All the best, Bill.
 
mackenzie said:
Bill has had some stick on here recently, but I'd just like to say that Bill is one of the most generous men I have ever had the privilege to meet.
Love you Bill xx
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He’s a big blue by the looks of things so that’s enough for me
 
The wife's niece lost her fiancee due to a convulsion in his sleep and after a few years she married Chris who was there for her and had always been one of their circle of close friends... I've never totally seen eye to eye with Chris as he's a bright lad but a died in the wool dipper... They are both around 40 now with two kids aged around 8 and 11.

Chris was diagnosed with MND about two years ago and now he's really going downhill... It's pretty heartbreaking to think that Kate will eventually be on her own again and the kids will lose their Dad

Life really is shit sometimes....
 
somapop said:
Was just finishing some work off so stuck this on in the background but I was transfixed (so had to write off my evening walk!).

My god that was heartbreaking.

What a brave blokes but what a supportive family (his daughter speaking about him broke me :( )
His pseronality and humanity shone through very brightly.
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I haven't watched it, but no surprise you think he is a brave bloke. Spent all his career half the size of most of his opposition and never took a backward step. Top player top man.
 
mackenzie said:
Bill has had some stick on here recently, but I'd just like to say that Bill is one of the most generous men I have ever had the privilege to meet.
Love you Bill xx
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I’ll second that mate, absolutely top bloke Bill (even if he does tease a bit now and then :-D).
Helped out me and my daughters too in the past when they were just starting out on their own in life when he really didn’t have to (and I know he has with plenty of others too), he’s up there as one of the biggest plus points of joining this forum and getting to meet some members.

All the best Bill (and Rob too) and hope things aren’t too difficult for you mate x
 
thank you all for your nice comments.

watching Rob breaks my heart . he's so bloody young .
how he has stayed alive is amazing . poor thing losing his voice . an inspiration .
i am not quite there yet but it's going . i am too big to be carried (remember Feyenoord and Monaco lol) so i have to be hoisted everywhere . being on a ventilator 24/7 means no swimming /flying and of course no European away days.
i have had a visit from the palliative care team to " plan my death " they have warned me that my carbon dioxide levels will soon be too high for my ventilation unit to cope . so basically when do you fancy calling it a day. i explained that i am not ill,i just have MND.
i have no limbs
i foul myself sometimes
i can't breathe on my own
i am fed with a spoon
but me and Rob are both made of the same stuff.

i WILL be at the CL final at Wembley 2024.
 
Bill said:
thank you all for your nice comments.

watching Rob breaks my heart . he's so bloody young .
how he has stayed alive is amazing . poor thing losing his voice . an inspiration .
i am not quite there yet but it's going . i am too big to be carried (remember Feyenoord and Monaco lol) so i have to be hoisted everywhere . being on a ventilator 24/7 means no swimming /flying and of course no European away days.
i have had a visit from the palliative care team to " plan my death " they have warned me that my carbon dioxide levels will soon be too high for my ventilation unit to cope . so basically when do you fancy calling it a day. i explained that i am not ill,i just have MND.
i have no limbs
i foul myself sometimes
i can't breathe on my own
i am fed with a spoon
but me and Rob are both made of the same stuff.

i WILL be at the CL final at Wembley 2024.
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That’s genuinely heartbreaking to read mate yet at the same time inspiring, when it’s time (I’ll say this now in case I don’t get to, too many times I’ve left things for tomorrow, and that tomorrow never arrived), know that the people who knew you, knew you as a fuckin class act, pure and simple, and one of the kindest and generous people I’ve ever met x
 
Dirty Harry said:
That’s genuinely heartbreaking to read mate yet at the same time inspiring, when it’s time (I’ll say this now in case I don’t get to, too many times I’ve left things for tomorrow, and that tomorrow never arrived), know that the people who knew you, knew you as a fuckin class act, pure and simple, and one of the kindest and generous people I’ve ever met x
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thanks mate but shh, i don't want my Tory cover blown :)
seriously though you are right , there is no tomorrow .
there is nothing i can do about my illness but i can pass on what I have learnt the hard way . do not wait . go to that place . do that that thing. above all, build bridges with people you think you no longer matter to , believe me you do .
if you do all that then live to 93 what have you lost ?
 
Bill said:
thanks mate but shh, i don't want my Tory cover blown :)
seriously though you are right , there is no tomorrow .
there is nothing i can do about my illness but i can pass on what I have learnt the hard way . do not wait . go to that place . do that that thing. above all, build bridges with people you think you no longer matter to , believe me you do .
if you do all that then live to 93 what have you lost ?
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Well said mate, and I won’t mention you employ United fans either (who actually think the world of you despite your wind ups lol, which I think speaks volumes ).
 
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