The "let's talk" thread

Well the shitty call has come in from my sister.

Oncology have signed my Dad off to palliative care provided by the local (and excellent) hospice. He’s gone from 18 to around 8 stone and it feels as though my world’s falling in.

I’m due over for a week at the start of Feb for the West Ham game but am now likely over before.

What the fuck can one say?
 
Well the shitty call has come in from my sister.

Oncology have signed my Dad off to palliative care provided by the local (and excellent) hospice. He’s gone from 18 to around 8 stone and it feels as though my world’s falling in.

I’m due over for a week at the start of Feb for the West Ham game but am now likely over before.

What the fuck can one say?
I'm sorry honey,i've read how much you adore him x
 
I've had a MRI today as i've been struggling with the effects of a brain injury i have been living with for a long time,there are changes on it which might explain my balance leaving the building this last couple of years,some degeneration or perhaps a small bleed in that area it's very complicated thing to live with,it changes you and not for the better,need to get the proper report done and measurements etc then talk again,support group to try and get a grip on the behavioural aspect which has slipped recently,it never rains but it pours

The human body is a fantastic thing until it goes wrong
 
I've had a MRI today as i've been struggling with the effects of a brain injury i have been living with for a long time,there are changes on it which might explain my balance leaving the building this last couple of years,some degeneration or perhaps a small bleed in that area it's very complicated thing to live with,it changes you and not for the better,need to get the proper report done and measurements etc then talk again,support group to try and get a grip on the behavioural aspect which has slipped recently,it never rains but it pours

The human body is a fantastic thing until it goes wrong


So sorry to hear that Karen , I know how worrying the “not knowing” can be. Hope the MRI result is more positive than you think. Take care , hope City produce a wonderful performance for you on Sunday and next Wednesday to keep you distracted.
CTID
 
So sorry to hear that Karen , I know how worrying the “not knowing” can be. Hope the MRI result is more positive than you think. Take care , hope City produce a wonderful performance for you on Sunday and next Wednesday to keep you distracted.
CTID
Thanks lovely,i'm alright,it won't be anything i can change,i only have a certain amount of control with it at the best of times so no point fretting too much,i decided recently not to hide it anymore which is quite liberating in itself
 
The human body is a fantastic thing until it goes wrong

indeed. I also today had a visit to the hospital.

I’ve suffered for over 2 years with an intestine/belly issue. I’ve had every scan/test available (including investigative op) -all organs working - and nothing, nada, zip, no reason that Consultant or GP can find. It causes ups and downs in my ability to work/think or labour. I can go from having a great session at the gym to feeling ‘am I going to make it up the stairs’ in a few days.

It’s been a grind and taken it’s toll on me mentally, along with a whole host of other things in the family, including the complete PTSD collapse of Mrs JASR... not helped by my inability due to the above (or below).

The above followed on from another mystery illness, which was finally diagnosed and hence treatable after 9months, as visual vertigo - basically my eyesight took over my balance duties after a viral infection in my ears, and wouldn’t let go of it’s assumed duties when my ears came back on duty - I could walk down the street and passing a lamppost, it felt like the lamppost was lurching into me. Had a brain scan and various tests, all good - there was a brain there.

but today, I had a repeat test of something I’d had done a year ago, and this time, finally, for the 1st time, a test was ‘positive’ - ie they knew something about what was wrong with me! It was a joyous moment to be diagnosed with something..heh. Bizarre, but we’ve both,Mrs JASR and I, been celebrating, as something is finally ‘known’... just need to sort out the ‘how to fix’ now!

the health worker thought I was clearly ‘special’, and a mystery... which was the same with the visual vertigo diagnosis, as well as what Mrs JASR thinks of me....in that particular way...heh

so, for the 1st time in awhile, I can see, not the ‘end’, but at least ‘the start of the end’. Which, considering where I’ve been mentally in the past few years is a strange, but good, feeling.

I can’t praise the NHS and all its professional medical, admin and menial staff enough. I’ve paid taxes for 30 years, and it’s been worth every penny that has gone to those people to look after me and the rest of the population.
I’ve been to more than my fair share of A&E depts (none stupidly self inflicted), - Mrs JASR works in them, and again I’ve ...not enjoyed my moments there... but fully appreciated what the UK has.

... having finally arrived in the mental health side of the NHS (long delays)...I can see it’s beyond breaking point and is just doing similar to A&E.. fire fighting and hoping to get through to the end of the shift... :(

apologies for the longggg post, far longer than I thought I’d post when I started replying to Karen... but as the thread says...it’s good to talk.

So, finally, I’d just like to say I’ll hopefully get to a BM meetup, having been kyboshed with being too ill on 2 possibly 3 occasions now, over the past 2 years. It’s a small thing on a bucket list. But it’s the small positives that get you through and onwards.
 
indeed. I also today had a visit to the hospital.

I’ve suffered for over 2 years with an intestine/belly issue. I’ve had every scan/test available (including investigative op) -all organs working - and nothing, nada, zip, no reason that Consultant or GP can find. It causes ups and downs in my ability to work/think or labour. I can go from having a great session at the gym to feeling ‘am I going to make it up the stairs’ in a few days.

It’s been a grind and taken it’s toll on me mentally, along with a whole host of other things in the family, including the complete PTSD collapse of Mrs JASR... not helped by my inability due to the above (or below).

The above followed on from another mystery illness, which was finally diagnosed and hence treatable after 9months, as visual vertigo - basically my eyesight took over my balance duties after a viral infection in my ears, and wouldn’t let go of it’s assumed duties when my ears came back on duty - I could walk down the street and passing a lamppost, it felt like the lamppost was lurching into me. Had a brain scan and various tests, all good - there was a brain there.

but today, I had a repeat test of something I’d had done a year ago, and this time, finally, for the 1st time, a test was ‘positive’ - ie they knew something about what was wrong with me! It was a joyous moment to be diagnosed with something..heh. Bizarre, but we’ve both,Mrs JASR and I, been celebrating, as something is finally ‘known’... just need to sort out the ‘how to fix’ now!

the health worker thought I was clearly ‘special’, and a mystery... which was the same with the visual vertigo diagnosis, as well as what Mrs JASR thinks of me....in that particular way...heh

so, for the 1st time in awhile, I can see, not the ‘end’, but at least ‘the start of the end’. Which, considering where I’ve been mentally in the past few years is a strange, but good, feeling.

I can’t praise the NHS and all its professional medical, admin and menial staff enough. I’ve paid taxes for 30 years, and it’s been worth every penny that has gone to those people to look after me and the rest of the population.
I’ve been to more than my fair share of A&E depts (none stupidly self inflicted), - Mrs JASR works in them, and again I’ve ...not enjoyed my moments there... but fully appreciated what the UK has.

... having finally arrived in the mental health side of the NHS (long delays)...I can see it’s beyond breaking point and is just doing similar to A&E.. fire fighting and hoping to get through to the end of the shift... :(

apologies for the longggg post, far longer than I thought I’d post when I started replying to Karen... but as the thread says...it’s good to talk.

So, finally, I’d just like to say I’ll hopefully get to a BM meetup, having been kyboshed with being too ill on 2 possibly 3 occasions now, over the past 2 years. It’s a small thing on a bucket list. But it’s the small positives that get you through and onwards.
Great post lovely

I know why you are happy to get some kind of diagnosis after all this time,without it you can't get control,even if it can't be fixed having a name that you can research and try and help yourself can give you a huge lift,it's the not knowing that is really difficult in my experience

Getting to a meet up was on my list as well,it's taken a lot out of me but it was worth every single minute,i'm planning on getting up again to see dave off,let's target that together,we can push each other to make it happen
 
Got the complete MRI results today,pretty much what he said the other day about a small bleed and degeneration where the original injury was
Basically thats why i keep failing over,i'm stuck with it now which is a pain,all the breaking bones from failing are happening at home and he said i have to concentrate as much as i do outdoors,not thinking i don't have to put in the effort to be careful
I fainted and banged my head on an indoor wall right before the falls started,it hurt and i had a big bump and a headache but thought it was ok,i didn't make the link when tne falls started
My consultant tore me off a strip for not going to hospital,he said what did we tell you the golden rule is,i said dunno,it's any new head injury has to be checked out,i said i've forgotton that as well as the other million things,along with just living with the original brain injury
Tells me to use a stick or crutch unless i have someone who can hold onto me
I used to do everything for myselt,stand on a chair or walking on the kitchen work tops,now i have to ask someone to change a fucking lightbulb,so frustrating
I wasn't expecting to be worse again,it's a whole new level of shite and not helping my mental health one little bit
 
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Got the complete MRI results today,pretty much what he said the other day about a small bleed and degeneration where the original injury was
Basically thats why i keep failing over,i'm stuck with it now which is a pain,all the breaking bones from failing are happening at home and he said i have to concentrate as much as i do outdoors,not thinking i don't have to put in the effort to be careful
I fainted and banged my head on an indoor wall right before the falls started,it hurt and i had a big bump and a headache but thought it was ok,i didn't make the link when tne falls started
My consultant tore me off a strip for not going to hospital,he said what did we tell you the golden rule is,i said dunno,it's any new head injury has to be checked out,i said i've forgotton that as well as the other million things,along with just living with the original brain injury
Tells me to use a stick or crutch unless i have someone who can hold onto me
I used to do everything for myselt,stand on a chair or walking on the kitchen work tops,now i have to ask someone to change a fucking lightbulb,so frustrating
I wasn't expecting to be worse again,it's a whole new level of shite and not helping my mental health one little bit
Sorry to hear this Kaz, I remembered my mother went through similar some years ago.
She did stand on a stepladder to reach something and fell off, breaking her hip.
We told her never to climb on anything but she did anyway.
Anyway a long stint in hospital and hip replacement followed.
So just you do as your told, and enjoy life, you can talk to us mooners, or moaners, anytime...lol
 
Sorry to hear this Kaz, I remembered my mother went through similar some years ago.
She did stand on a stepladder to reach something and fell off, breaking her hip.
We told her never to climb on anything but she did anyway.
Anyway a long stint in hospital and hip replacement followed.
So just you do as your told, and enjoy life, you can talk to us mooners, or moaners, anytime...lol
Me do what i'm told? that's a stretch lol,on the plus side i do have a handsome handy man to perve over :)
 
Just a heads up of encouragement for people suffering from getting off substances.
December 27th 2018 I took my last opiate replacement for tramadol having struggled to get off the stuff for years.
I just determined to go through the sleeplessness, cramps, restless leg syndrome, etc.
Cleared the diary so I could concentrate on staying clean.
I did it.
It was a pretty uncomfortable three/four weeks but...
Now fourteen months clean and will never let a doc prescribe me tramadol again.
 
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He is the only one i know do i keep him as a pet,he kept it quiet for about 3 yrs whilst i banged on about city,only confessed a while ago
A few questions:

Has he ever been to Manchester or Stretford?
Does he like your pussy?
Has he got big tools and does he know how to use them?
 
So many tales of woe but also good to see that folk can scribe pen to paper or key to board to offload a little. Life certainly has the ability to deal out shitty hands and I guess it's down to us to deal with the cards dealt. Voltair once said “Each player must accept the cards life deals but once they are in hand he or she must alone decide how to play the cards in order to win”. We have to play with whatever we have and yes we can all quit, but if we were to simply quit then there would have been no point in picking up the cards in the first place. All we can is crack on to the best of our ability, but do you know what we all hold an ace in that pack and that ace is the ability to reach out to others more able than ourselves to put the deal into some order of semblance when we may be temporally at a loss or an ebb to to do so ourselves. And this is why this thread is remarkable because not one soul out there will not suffer trials/tribulations of some descriptor on the way to the promised land so good to open up talk and share and discuss. Well done everyone.
 
The reason I am about to make this post is not because i'm upset about the topic, but because I was (and still am) shocked at how prevalent this problem is. I'd be almost confident in saying there will be someone else on Bluemoon who is going through this right now.

Myself and the mrs have struggled to conceive for a few years. We've tried tests, various IVF cycles....a lot of pain for my mrs, the procedure is typically more physically difficult for the woman. All with no end result so far.

I'm at peace with it. If the end goal is to have a child, i'm not arsed if we have to use embryo donors or adopt. This post is just to say if anyone on here is going through this and wants a chat, then i'm all ears. I've wanted to say this for a while and this seemed like the opportunity and place.

It's really common. Sitting in the clinic is like a people farm - endless streams of couples, in and out. Science is staggering, you can even choose what you want your child to look like. Anyway, door's open!

Went through the exact same issue 10 years ago - due to postcode lottery we wasted a fortune on IVF - the IVF treatments caused hormone imbalances which seriously affected my wifes health. In the end we decided to adopt via Barnardos. Best thing we ever did. Our 2 daughters have now been with us for 8 years.
 
As suggested here is a thread for you to talk, who ever you are.
Its about you.
Say,ask,rant unload about anything worrying you. Pm me, any mod,any member, all are welcome, even scouse.
There are people on here with profound knowledge, people with unbelievable life skills who have been there and done it, and come through it,i know i have.also people who are listeners.
Either way you are not alone.
No politics
No football
Just talk about you.

absolutely amazing idea, well done
 
I'm hoping a corner has been turned now, I start work again on Monday at a long term job, minimum of 18 months.

That's after being off due to mental and physical problems since August. I'm looking forward to it, and dreading it in equal measures.

The good thing is, it's back with the company I did 9 months for up until last January, and I know and get on well with nearly everybody on the job.

The only thing that really worries me, is the walking, it's a big site and as it's the start of the job, there will be a lot of to-ing and fro-ing.

Having said that, I REALLY need to lose weight (only lost around 10lbs so far), so it should be beneficial for me that way, as long as my back and knees hold up!
 

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