hope your well soon mate.its the catheter that im a bit worried about tbh.my dad had one after a stroke and he kept pulling it out and getting water infections.i must admit im not looking forward to the op or afterwards.nobody has really mentioned brachytherapy to me just radiotherapy and prostatectomy.Sorry to hear this but it must mean that they’ve caught this very early.
I have a good prognosis but mine was judged slightly too late for this option - the coward in my is secretly glad.
Just back from The Christie because I had my brachytherapy session yesterday. Overall it wasn’t too bad. Lots of waiting around. I had a general anaesthetic so was out for it all, and then I was wheeled back to my private room with a catheter. I wasn’t in any pain but I hardly slept because with the catheter and saline drip attached, side-sleeping wasn’t a realistic option. So I just lay propped up listening to music for about 5 hours!
CT scan this week to be followed by three weeks of radiotherapy in a couple of weeks.
Sorry to hear of your brother’s experience, but thank you for posting his story to encourage others.My brother passed away last week . Initially diagnosed with colon cancer and after an op last November was given the all clear . He had no follow up appts despite trying to get some as his recovery seemed to be awfully slow and lack of mobility . Turned out they missed some of the cancer which then spread to his liver and bones, meaning he was straight into palliative care from June . My message is good luck fighting your illness blues , it doesn’t necessarily mean the end of your life , but listen to your body and if it doesn’t feel right either pre or post diagnosis , raise up complaints to ensure you are listened to and have the correct diagnosis/ treatment going forward .
I’m guessing that they will only consider a prostatectomy when there is a very good chance they can get all of the cancer out in one go without the chance of it already having spread.hope your well soon mate.its the catheter that im a bit worried about tbh.my dad had one after a stroke and he kept pulling it out and getting water infections.i must admit im not looking forward to the op or afterwards.nobody has really mentioned brachytherapy to me just radiotherapy and prostatectomy.
That is terrible, my condolences to you. Hard to believe that there were no follow-up appointments after such a major operation. It just goes to show that if you think something is wrong, you have to keep pushing.My brother passed away last week . Initially diagnosed with colon cancer and after an op last November was given the all clear . He had no follow up appts despite trying to get some as his recovery seemed to be awfully slow and lack of mobility . Turned out they missed some of the cancer which then spread to his liver and bones, meaning he was straight into palliative care from June . My message is good luck fighting your illness blues , it doesn’t necessarily mean the end of your life , but listen to your body and if it doesn’t feel right either pre or post diagnosis , raise up complaints to ensure you are listened to and have the correct diagnosis/ treatment going forward .
Sounds almost the same treatment I had. The radiotherapy in itself is pain-free but the fatigue that follows can be a bit of a shock. You will be told to drink lots of water before every session. A word to the wise. On your trips to your sessions avoid speed bumps as bladder control gets worse for a few weeks.Sorry to hear this but it must mean that they’ve caught this very early.
I have a good prognosis but mine was judged slightly too late for this option - the coward in my is secretly glad.
Just back from The Christie because I had my brachytherapy session yesterday. Overall it wasn’t too bad. Lots of waiting around. I had a general anaesthetic so was out for it all, and then I was wheeled back to my private room with a catheter. I wasn’t in any pain but I hardly slept because with the catheter and saline drip attached, side-sleeping wasn’t a realistic option. So I just lay propped up listening to music for about 5 hours!
CT scan this week to be followed by three weeks of radiotherapy in a couple of weeks.
Thanks, it’s good to know what to expect. My radiotherapy will be 15 sessions over three weeks.Sounds almost the same treatment I had. The radiotherapy in itself is pain-free but the fatigue that follows can be a bit of a shock. You will be told to drink lots of water before every session. A word to the wise. On your trips to your sessions avoid speed bumps as bladder control gets worse for a few weeks.
I finished my radiotherapy sessions at the end of April and finished my hormone tablets in mid June. Just waiting now until a follow up PSA check the week before Christmas. It's a long wait and it will be my first opportunity to know if the treatment has been successful.
As others have said good luck to everybody going through and about to go through treatment. If you can get yourselves checked out. In my case I was totally symptom free.
Bladder control probably at 85% of a normal level now some 5 months after radiotherapy and 3 months after completion of hormone tablets. If you haven't had them yet you will get medication that will help.Thanks, it’s good to know what to expect. My radiotherapy will be 15 sessions over three weeks.
How long were you fatigued for and how does the bladder control improve over time?
No apology necessary - I’ve asked and you’ve supplied the exact information I need. I realise it will be different for everybody so we’ll see how it goes. Thanks again for sharing.Bladder control probably at 85% of a normal level now some 5 months after radiotherapy and 3 months after completion of hormone tablets. If you haven't had them yet you will get medication that will help.
It didn't stop me from going for small walks but I made sure any walks passed places I could call in at should the need arise. My walk passed a McDonald's, Weatherspoons and Sainsburys.
Re the fatigue I am still struggling although there is improvement. I have a friend who had the same treatment and his fatigue didn't fully go for about 15 months. I've been told that there is no hard and fast rule to how long it lasts although it will be at its worse about 7-10 days after your last radiotherapy session.
Be aware that you will feel uncomfortable at The Christie in the half hour before your radiotherapy sessions. Prior to your sessions you have to empty both your bladder and rectum. You will get a supply of enemas which help. Don't let it worry you as everyone else in the waiting room is in the same boat and stories do get swapped between patients.
Sorry that this has been a bit of a ramble but I hope it helps you and others.
Good luck with that. I'm sure it will be the case based on what you've said previously.Just received my 6 month check for next Friday 18th Oct from Tameside Urology hoping that 13.1 psa is finally written off as a false reading
Same road as I went down, we met both teams on the same day and opted for prostate removal, having being told that if that the radiotherapy wasn’t successful then surgery wasn’t an option due to the radiation, we was quite surprised at this, .ive got an appointment with radiology tommorrow and one with a surgeon on 25th october about a radical prostatecomy.the consultant i first saw thinks having the prostate out would be the best for my case.but says i should speak with them both before i decide.
Good luck mateGood luck with that. I'm sure it will be the case based on what you've said previously.
I've got the first of 15 radiotherapy sessions tomorrow.
Good luck mateive got an appointment with radiology tommorrow and one with a surgeon on 25th october about a radical prostatecomy.the consultant i first saw thinks having the prostate out would be the best for my case.but says i should speak with them both before i decide.
Sorry for your loss mateMy brother passed away last week . Initially diagnosed with colon cancer and after an op last November was given the all clear . He had no follow up appts despite trying to get some as his recovery seemed to be awfully slow and lack of mobility . Turned out they missed some of the cancer which then spread to his liver and bones, meaning he was straight into palliative care from June . My message is good luck fighting your illness blues , it doesn’t necessarily mean the end of your life , but listen to your body and if it doesn’t feel right either pre or post diagnosis , raise up complaints to ensure you are listened to and have the correct diagnosis/ treatment going forward .
good luck fellaAn emergency Ileostomy on New Year’s Eve for colon perforation and stage four tumours in the large colon. it didn’t spread to the 46 lymph nodes. So blood tests every three months came back normal so far.
For other health reasons I opted for monitoring instead of chemo just observation. Once the tumours were removed it’s classed as stage 2 cancer.
At the moment I’m waiting for a 2nd opinion at Salford Royal on a ileostomy reversal my consultant doesn’t advise me to have it reversed. Waiting is the hard part never dreamed I’d dice with life twice, almost died but by a miracle I’m still here only posting because other blues may be going through the same thing.