Dementia

100 miles walking olin May for Parkinson's completed, donation made. My other half to complete her's today and then will add up total. It's in aid of her mother who's in care home with Parkinson's dementia
 
On a side re her mother. We thought social services were paying the care home fees as has nothing since January, no bills or invoices. They rang and emailed my other half yesterday we owe them roughly £10k for 6 months and sent list of care homes the mother can move to. Deadline of Monday.

Told her to tell them that's not feasible as need to have family discussion then visit the care homes to find suitable one
 
On a side re her mother. We thought social services were paying the care home fees as has nothing since January, no bills or invoices. They rang and emailed my other half yesterday we owe them roughly £10k for 6 months and sent list of care homes the mother can move to. Deadline of Monday.

Told her to tell them that's not feasible as need to have family discussion then visit the care homes to find suitable one
We've had a similar situation, but for care workers to visit rather than care homes. Nothing for weeks, then a huge bill. It's impacted us hugely.

Financially of course, but probably worse is the mental impact, the guilt and stress my wife in particular is feeling, I'm watching it consume her little by little every day. Handling the carers, rushing round when something doesn't seem right, trying to still be a full time worker, mum and wife. Even though it is her mum who has the dementia it's still hugely impactful for everyone else.

Hope you get sorted. I don't think it's possible to truly understand the impact of this illness until you're in the middle of it.
 
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We've had a similar situation, but for care workers to visit rather than care homes. Nothing for weeks, then a huge bill. It's impacted us hugely.

Financially of course, but probably worse is the mental impact, the guilt and stress my wife in particular is feeling, I'm watching it consume her little by little every day. Handling the carers, rushing round when something doesn't seem right, trying to still be a full time worker, mum and wife. Even though it is her mum who has the dementia it's still hugely impactful for everyone else.

Hope you get sorted. I don't think it's possible to truly understand the impact of this illness until you're in the middle of it.
Thanks mate we've been through mill in last year n bit. But always something just stopping us. We'd week in lakes last week with very little phone signal, I'd sorted out my sister's benefits issues, we'd sorted out her father's catheter issues. Thinking things starting to look ok n this
 
Hope everyone doing ok. My sister spent her backdated money on getting her bedroom decorated, new bed, wardrobes, carpet, curtains, etc. Can't remember last time she'd anything like this done. Our cousin did the decorating and a good friend who owns furniture company supplied everything. Sister was that bad that she couldn't remember who decorated. They did a video of her entering her room and she cried (so did I when I watched it).

Other side my partners dad was 90 last week and was her mum's birthday as well. Mum in care home with Parkinson's dementia so we'd a cream tea organised. She just cried and let out a moan for almost full 5 hours we were there. She's got a head massager thing and was quiet when my other half or me took turns using it. They tried a morphine patch for her pain and she took allergic reaction so her lips swoll up.

It's been a week of real real highs and real lows
 

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