Any Long Covid sufferers on here?

BLUEYESTU said:
I’ve posted about Long Covid in the past but I really need to find out if what I’m suffering from is a symptom of that or maybe something else?
I tested positive end of January and suffered pretty badly with the coughing and lung problems for at least 6 weeks. My lung capacity is pretty much back to normal but I’ve been left with pain in my joints that’s making life quite difficult at times - feet/ankles, knees, hands/wrists all ache and the muscles around them are painful too. But recently my hands have been getting much worse to the point where I can’t use my right hand for anything because the pain is ridiculous - it feels like somebody has hit it with a hammer! Luckily I’m left handed but my handwriting is illegible at times because I just can’t get the pen to do what I want. (Typing this is very slow and I have to keep swapping fingers because they ache if I’m using them).
I’m using pain relief but not getting much from paracetamol and anti inflammatories, heat is the only thing that gives any relief. I can’t do Basic Life Support training at work which is a big issue in the NHS, and struggled to dress myself this morning as I couldn’t do buttons. My gp sent me for X-rays I have to wait weeks for a telephone appointment to get results and the Long Covid team has a waiting list over 9 months long.
Has anybody else had Covid effects this extreme?

Mods feel free to merge elsewhere if necessary.
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Not medical advice but any joint swelling and has the GP done tests for inflammatory/autoimmune conditions? Usually blood tests. Symptoms could be rheumatoid arthritis related?
 
Marklr said:
I'm still getting counselling to stop me topping myself. Not that I want to end my life...but sometimes it feels like it.
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My lad says he has regressed to a 16 year old in that his hobbies now are computer games and constructing model sports cars. Thank god he has enough to keep his mind away from his condition. I frankly don’t know how he keeps so even tempered. I hope the councilling helps mate. Hope your Christmas is as good as it can be. Please god someone has a breakthrough on how to treat it next year.
 
Saddleworth2 said:
He is 38. Used to climb mountains, cycle race, told by his Doctor he had the lungs of an elite athlete. Caught Covid for the first time in the summer of 2022. Brushed it off he thought…..
He is lucky that his employer allows him to work from home. He is still as sharp as a tack but his body is in constant turmoil. He is managing his condition by strict diet and no physical activity at all. That seems to lessen the worse of the crashes but god knows what other damage it’s doing. My eldest daughter also has it and just returned to work recently. She is a year in. I guess as a family, we have just been unlucky as it’s like the condition doesn’t exist to everyone that hasn’t experience of it.
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Must be hard to witness. Best wishes to you and your family this Christmas buddy.
 
Saddleworth2 said:
He is 38. Used to climb mountains, cycle race, told by his Doctor he had the lungs of an elite athlete. Caught Covid for the first time in the summer of 2022. Brushed it off he thought…..
He is lucky that his employer allows him to work from home. He is still as sharp as a tack but his body is in constant turmoil. He is managing his condition by strict diet and no physical activity at all. That seems to lessen the worse of the crashes but god knows what other damage it’s doing. My eldest daughter also has it and just returned to work recently. She is a year in. I guess as a family, we have just been unlucky as it’s like the condition doesn’t exist to everyone that hasn’t experience of it.
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My muscles have wasted due to nearly 3 tears of no exercise. Very painful...the slightest movement causes strained/pulled muscles. I'm going to go back to the swimming baths after New Year.
 
Saddleworth2 said:
My lad says he has regressed to a 16 year old in that his hobbies now are computer games and constructing model sports cars. Thank god he has enough to keep his mind away from his condition. I frankly don’t know how he keeps so even tempered. I hope the councilling helps mate. Hope your Christmas is as good as it can be. Please god someone has a breakthrough on how to treat it next year.
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I'm off down to my sons in Northwich tomorrow for the day. I hope I can manage it. He's picking us up. And yeah...I'm looking at hobbies i can now manage ... model cars and the like have crossed my mind too. I've also been advised to join the local Man Shed.
At the moment, I'm between my computor and lying on the couch. I've already had a mid-day nap....i'll probably have another nap in a bout an hour. Nobody bothers with me anymore..haha...i'm useless to all.
 
Marklr said:
I'm off down to my sons in Northwich tomorrow for the day. I hope I can manage it. He's picking us up. And yeah...I'm looking at hobbies i can now manage ... model cars and the like have crossed my mind too. I've also been advised to join the local Man Shed.
At the moment, I'm between my computor and lying on the couch. I've already had a mid-day nap....i'll probably have another nap in a bout an hour. Nobody bothers with me anymore..haha...i'm useless to all.
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Keep battling buddy. You are never useless in life. I’m sure your family love you. Always conversation to be had on here :-)
 
Millwallawayveteran1988 said:
Keep battling buddy. You are never useless in life. I’m sure your family love you. Always conversation to be had on here :-)
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Cheers, mate. My family are great (probably sick of the long COVID) but many friends don't bother any more. I lost contact with some friends years ago through drinking too much. Then I lost contact with some more friends when i GAVE UP drinking..haha. Billy no mates now.
 
Marklr said:
I'm off down to my sons in Northwich tomorrow for the day. I hope I can manage it. He's picking us up. And yeah...I'm looking at hobbies i can now manage ... model cars and the like have crossed my mind too. I've also been advised to join the local Man Shed.
At the moment, I'm between my computor and lying on the couch. I've already had a mid-day nap....i'll probably have another nap in a bout an hour. Nobody bothers with me anymore..haha...i'm useless to all.
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No you bloody aren’t.
Enjoy your visit with your lad.
 
The tories left the long covid sufferers behind and labour dont seem to want to help them either. The clinics are too few and far between, travelling is not easy when you are that ill

In some ways it is similar to ME , the exhaustion and muscle weakness and muscle wastage and pain everywhere or that is fibro mixed in. The ways to cope with that are the same as some elements of long covid. The trouble is that when i was diagnosed with the above back in 1993 i only had one dr on my side, the rest said it was a mental problem. Whilst better understood now it is still difficult to find drs who get it

Of course with long covid you have organ damage as well, that is the new and most difficult element . I had covid lungs for over a year, inhalers, endless steroids and antibiotics, scans and tests , it seemed like it would never go away but in the end it did get better and i have been off all of that for a couple of years so there is hope there

My gp was a youngish fit man with long covid, organ damage was his heart, lungs and brain, he had to retire which was a real shame . It is real and it needs proper funding . Most people have forgotten how bad covid was and want to look away from it now but sadly there are tens of thousands of people still suffering
 


A very Intresting discussion with Professor Clancy, from Australia.
I've listened to it twice now ,and there are tips to pick up later in the vid
after fighting your way through the early parts....

Hope it's of some use to somebody.
 
No idea but a near constant cough and no energy for what seems 2 years now.

Maybe I’m just getting old, I don’t know but it’s fucking draining me I know that.
 
I've mentioned this a tonne of times so apologies, but I had Long covid back in 2021.
Could barely manage to walk a few metres without getting out of breath. Stairs were a nightmare and had to stop and rest after each flihgt. Bear in mind I'd ran a half marathon the week before I got hit with Covid (Jan 2021).

Took nearly a year before I could start running again.

I had Covid again back in August last year (not as bad as the 21 bout but that was horrible) and feared the worse for the after effects.
Fortunately this only lasted a month so I was running again not long after.
Then in November I had a bad lung infection....just about recovered before getting the flu.
Again, recovered eventially and I was running over Xmas.

Then just after Xmas I caught yet another bug (from the kids). Chest infection crossed with sort throat.
But since then I've been absolutely wiped out. Like that scene in the Wizard of Oz when they all fall to sleep crossing that field. This feels lke long covid but I don't think I've had that since August last year.

Some kind of post viral chronic inflammation perhaps. I can't run again and just about manage long walks.
The tiredness is next level.

Weirdly I've spoke to a few at work and they've had the same thing (to the point we've all felt we were on our way our!!).

Not sure what to do aside from carry on recovering, odd walks and yoga and hope it shifts?

Without exercise my mood drops rapidly.
 
somapop said:
I've mentioned this a tonne of times so apologies, but I had Long covid back in 2021.
Could barely manage to walk a few metres without getting out of breath. Stairs were a nightmare and had to stop and rest after each flihgt. Bear in mind I'd ran a half marathon the week before I got hit with Covid (Jan 2021).

Took nearly a year before I could start running again.

I had Covid again back in August last year (not as bad as the 21 bout but that was horrible) and feared the worse for the after effects.
Fortunately this only lasted a month so I was running again not long after.
Then in November I had a bad lung infection....just about recovered before getting the flu.
Again, recovered eventially and I was running over Xmas.

Then just after Xmas I caught yet another bug (from the kids). Chest infection crossed with sort throat.
But since then I've been absolutely wiped out. Like that scene in the Wizard of Oz when they all fall to sleep crossing that field. This feels lke long covid but I don't think I've had that since August last year.

Some kind of post viral chronic inflammation perhaps. I can't run again and just about manage long walks.
The tiredness is next level.

Weirdly I've spoke to a few at work and they've had the same thing (to the point we've all felt we were on our way our!!).

Not sure what to do aside from carry on recovering, odd walks and yoga and hope it shifts?

Without exercise my mood drops rapidly.
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Sorty to hear that
Have you listened to the vid I posted above ...
 
dennishasdoneit said:
You can take a horse to water...
Ffs
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He’s a conspiracy theorist talking to another conspiracy theorist. 99.9% of what he says is cherry picked nonsense. But the tips might fall into the 0.01% of real info that might help people who need it.

So why not just share the tips here to save people listening to the rest of it?

During the covid year I watched every daily update and summarised it for people in that thread. Just asking for the same thing. 1m to read be half hour to watch.

I won’t be dignifying his channel with any more views personally.
 
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I'm not a long-COVID sufferer - but I thought I'd share this short video from the popular Youtube poster, Physics' Girl - I'm so happy for her!
 
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