General / Mental Health Support Thread

Struggling majorly now. I think it’s the sheer boredom plus inability to sleep long periods. Hospitals are surely not nice places to be.

I’m in a ward of four and can’t form any camaraderie with the others because they’re in and out in just a few nights.

Completely restless. No energy.
For being places designed for recovery, hospitals can sometimes be pretty terrible places for recovery. The boredom, the difficulty sleeping, the seeming lack of agency as you are confined to your bed, and the constant poking, prodding, and interrogation from an endless parade of carers.

Still, it largely beats the alternatives! And it is usually only temporary.

It sounds like you are on the path to being able to go home soon, so just have to focus on that.

Easier said than done, of course. Maybe ask if they have any unsolved crosswords?
 
Last night I finally slept almost through. Getting up just once to go to the toilet. The latter being expected given what I’ve been put through physically. I’m still utterly shattered but mentally refreshed.

My aim is to be watching Wales v Poland at home on Tuesday. I have a ticket but clearly won’t be going.
 
Last night I finally slept almost through. Getting up just once to go to the toilet. The latter being expected given what I’ve been put through physically. I’m still utterly shattered but mentally refreshed.

My aim is to be watching Wales v Poland at home on Tuesday. I have a ticket but clearly won’t be going.

Sounds like you've come a long way in a few days from when you were having to click the morphine like billyo. Have no strong feelings about the Wales v Poland match other than I really hope you are able to watch the game at home.
 
Sounds like you've come a long way in a few days from when you were having to click the morphine like billyo. Have no strong feelings about the Wales v Poland match other than I really hope you are able to watch the game at home.
It was every six minutes at one point plus high pressure air to help me breathe more easily.

I think qualifying is less of a novelty than it was in 2016 etc. Finland were poor but I’m expecting a tougher test from Poland.
 
Last night I finally slept almost through. Getting up just once to go to the toilet. The latter being expected given what I’ve been put through physically. I’m still utterly shattered but mentally refreshed.

My aim is to be watching Wales v Poland at home on Tuesday. I have a ticket but clearly won’t be going.
Has anyone visited and brought you your bucket hat :-)
 
I’m in Arrowe Park, Wirral so I don’t expect Bluemoon visits. I’m going to work on my physical recovery and aim to get out Monday.
 
I would laugh, but I got food poisoning the last time I was in hospital, to add to the reason I was there, and the experience is still fresh in my memory.
Hardcore food poisoning is very serious. It can whack you out big style.

A cheap caramel yogurt did it for me once. My then housemates weren’t far off calling an ambulance.
 
I really like to do meditation, the feeling of total relaxation is amazing. For anyone suffering stress or anxiety I would totally recommend it.

This Woman's YouTube channel has some great vids for mental relaxation play around and see if any suit you.

I concur.

If you think you're doing it wrong you aren't.

The mind races with thoughts. I like the term monkey mind because that happens to me when I feel overwhelmed. A constant stream of brain noise.

Meditation does still the mind. It feels weird, well it did to me the first real moment of presence. It was a flash, like a funnel had opened and drained all the thoughts.

Very rarely that occurs. Maybe that's because I'm scared? It's a new, uncomfortable feeling.

I call my brain a computer that is in desperate need of a de frag.

Meditation does that.
 
I concur.

If you think you're doing it wrong you aren't.

The mind races with thoughts. I like the term monkey mind because that happens to me when I feel overwhelmed. A constant stream of brain noise.

Meditation does still the mind. It feels weird, well it did to me the first real moment of presence. It was a flash, like a funnel had opened and drained all the thoughts.

Very rarely that occurs. Maybe that's because I'm scared? It's a new, uncomfortable feeling.

I call my brain a computer that is in desperate need of a de frag.

Meditation does that.
I think it's like anything in that practice makes you better at it. There was a time I used to listen too a relaxation tape 3 times a day, 30 mins each time. I found it almost addictive in the feeling it gave me once I'd become good at it.
 
I've been on the same medication for over seven years.
I don't think it's working anymore.
I've hit an extremely dark place and may need to go to hospital to see what they think
A.few.years ago I actually asked about electroconvulsive therapy (which now isn't what it was like in One Flew Over the Cuckoo's Nest) that's obviously a last resort.
Because of my autism and not working I have the day to myself and it's not easy. The best cure is physical work or strenuous exercise which being middle aged, I struggle with.
 
Finding it hard to come to terms with my fibro entering a new even more painful stage . The pain clinic third appt today is still offering advice in the hope of helping , i am following it but it is not really helping . I havent been able to walk as i was for six months now , not doing that in the fresh air is making me even more depressed and then the pain feels worse , caught between a rock and a hard place , life sucks, bastards
 
I've been on the same medication for over seven years.
I don't think it's working anymore.
I've hit an extremely dark place and may need to go to hospital to see what they think
A.few.years ago I actually asked about electroconvulsive therapy (which now isn't what it was like in One Flew Over the Cuckoo's Nest) that's obviously a last resort.
Because of my autism and not working I have the day to myself and it's not easy. The best cure is physical work or strenuous exercise which being middle aged, I struggle with.
I have been there in the past. It is fairly common for antidepressants and/or anti-anxiety medication to become less effective overtime. There are a few theorised mechanisms for this but the most prominent one is that your brain develops tolerance for the drug and builds workarounds for the specific targeting method (especially with SSRIs and SNRIs). Long term treatment almost always requires cycling treatments to maintain efficacy.

I definitely support your speaking with a clinician about what you are experiencing and what other medications or treatments might be appropriate, especially if you feel you have hit a dark place.

Don’t wait until hopelessness sets in. Your lying mind can be the biggest danger.
 
Finding it hard to come to terms with my fibro entering a new even more painful stage . The pain clinic third appt today is still offering advice in the hope of helping , i am following it but it is not really helping . I havent been able to walk as i was for six months now , not doing that in the fresh air is making me even more depressed and then the pain feels worse , caught between a rock and a hard place , life sucks, bastards
I am sorry to hear you are having more difficulty, Karen. Fibro is a bastard of a disease—my aunt in Zaragoza has it and it has recently stopped her from taking the daily walks she has done for most of her life, as well.

Are you apart of a Fibro support community?

If they are anything like my MSA community, they’ll often offer virtual events (or even in-person gatherings, when possible) that I have found to be very helpful for both managing the isolation that comes with the condition but also gleaning tips for managing pain or other issues that arise.

I actually found my current specialist that has helped me quite a lot over the last five months or so via my support community.
 

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